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---------- Forwarded message ----------
Date: Tue, 22 Aug 1995 11:09:51 -0600
From: [log in to unmask]
To: [log in to unmask]
Subject: Caregivers
 
We've been a subscriber now about 2 years and have tried to post a
message on the B.B. without any luck.
 
I am the caregiver as my husband who is 54 years old has had Parkinsons
for 11 years and have managed to cope with it quite well considering.
However recently he has started to experience some of the side effects as
a result of his medication  i.e. 14 Sinemet 25/100 per day and 16
Bromo 2.5 per day (very costly) and normal progression of the disease
which is causing very difficult problems.
 
On our last visit to our neurologist we asked for some alternatives and or
changes such as new or different drugs and his only suggestions was the
Pallidotomy in Toronto.
 
We would appreciate some opinions, options, commets etc. from others to
help us make some sort of an informed decision and also help us as well as
others take a more active role in our own health care.  There has to be
some viable alternatives such as new drugs which control the damage
being done and maybe even slow the progression.
 
My wife's e-mail address is ([log in to unmask])
 
Thank you Bev McNeill