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I approve of the proposal to provide more patient information. Jules Margolis (caregiver) Doris pd 72, 2yrs. On Mon, 11 Sep 1995, Barbara Patterson wrote: > What is your opinion of this? Does anyone have any strong feelings about > this, one way or the other? Barb > > ============================================================================ > Barbara Patterson [log in to unmask] > HSC 2J22 905-525-9140, ext. 22403 > School of Nursing > ============================================================================ > > ---------- Forwarded message ---------- > Date: 10 Sep 95 21:11:42 EDT > From: Norman Ichiyen <102230.3334@F ve.com> > To: Barbara Patterson <[log in to unmask]> > Subject: Added information about members > > Barbara: > > One thing I have found that is missing in the messages is more specific > information about the PD person in question. My wife, Ruth has PD, and is > considered a Young Parkinsonian (now 46, diagnosed 5 years ago). It helps us to > know the background of the people sending the messages and often it is not > given; e.g some people only say how long they have been diagnosed and not how > old they are. The speed of progression of Parkinsons symptoms seems to be > correlated to the age of onset. That is, progression seems slower for Young > Parkinsonians as opposed to those who contract it later in life. Our > neurologist, Dr. Gutman, has told us this and it seems to be consistent with t he > people we know who have PD. Therefore it is helpful for members of the > Parkinsons list to know these details. > > I suggest that in your welcome to new members you could ask them (on a volunta ry > basis) to add the information as part of their "sign-off". That is, instead o f > my closing the message with just, Norm Ichiyen - I could add specific extra in fo > such as: > (P) Ruth Ichiyen, > 46, 5, Toronto, Ontario, Canada. > > The (P) would designate the Parkinsonian involved; the 45 is the age now, the 5 > is years diagnosed, etc. > > It would not make the e-mail message much longer but it would help others to > more quickly determine similarities - be it age, years diagnosed or geopgraphi c > location. This information could help to encourage more direct contact betwee n > list members as well. > > What do you think? If you think this may be useful to others why not post thi s > message and ask for opinions. Remember it is only voluntary; i.e people are > only being asked to supply this info if they want to therefore it is not a > violation of privacy. > > Norm Ichiyen >