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Dear Dar:
 
I guess at age 43, like me, you're thoroughly fed up with PD. I was diagnosed in
'84,
and have been "ready" to make some kind of move to take back my life for a
couple of years.
 
To that end, I visited Dr. Freed in Denver to look at Fetal Implant; but passed
on it (too experimental for my taste; also no promised benefit for diskynesias).
When I heard about Pallidotomy the first time, I called Denver for advice and
was referred to Dr. Mahlon DeLong and his group at Emory U., whom I visited this
past January. They said I was a good candidate, in view of my good drug response
and diskynesias They also suggested that I contact Dr. Anthony Lang and his
group at the Toronto Hospital, closer to home and covered under Canadian
Medicare. (The whole deal cost me a few hundred for  a private room)
 
After a positive evaluation, I was scheduled for surgery end of July. The weeks
leading up to the actual procedure were full of worry- I particularly feared the
possiblity, rated around 3 to 5 %, depending on who you spoke to, of surgically
induced stroke. In retrospect, the odds look O.K. but before . . .
 
The day of the surgery they came for me bright & early. First they shot me full
of local anesthetic, then they bolted a stereotactic frame to my head (no pain,
some pressure). I looked like Anthony Hopkins in Silence of the Lambs. Then a
lengthy and noisy MRI. By then I was pretty uncomfortable, having been off meds
since the night before. After the MRI, surgery.  They tried to make me as
comfortable as possible in a dentist-type chair, gave me a dollar-sized shave,
and drilled a 3/8" hole in my skull.
 
They passed probes through the hole, and as the probes passed through active
regions, neural activity could be heard on big speakers in the OR. To accurately
map the target, they stimulated the region near the optic tract with small jolts
of electricity, resulting in visual fireworks. When I could no longer see these
diplays, they knew they were in safe territory and would not damage my vision
when they cooked my right globus pallidus. The operation took 3 hours and I
walked around the OR  right after the surgery.
 
You're probably eager to read the "bottom line". I was very fortunate to have
had a vey good result. I was almost useless before my surgery; now I can do
anything I wish...life is beautiful & I thank the Creator for giving the
surgeon, Dr. Andres Lozano, the knowledge and skill to help me this way. By the
way, I've cut back my meds (never very high) by about 1/3.
 
Hope this was of some assistance to you.
 
 
William Berman