ACTION ADVISORY TO: Parkinson's-affected Community, Clinicians and Researchers FROM: Joan I. Samuelson, Esq., President RE: 1996 FEDERAL BUDGET FOR NATIONAL INSTITUTES OF HEALTH DATE: October 27, 1995 The 1996 NIH budget is stalled in the U.S. Congress, and millions of dollars to Parkinson's research are hanging in the balance. We need your help. In September, the House of Representatives and the Senate Appropriations Committee approved significant increases in the NIH for 1996. In addition, the Senate added a historic, special neurodegenerative research initiative, adding $8 million for that purpose. Parkinson's research will be a significant beneficiary of that initiative. This effort is threatened by the failure of Congressional Republicans and Democrats and Clinton to reach a compromise on other issues in the 1996 budget, in and outside the "Labor-HHS" portion which includes the NIH. Background on this problem is provided below. It is doing great harm to the NIH and our Parkinson's research needs: Since the 1996 fiscal year started October 1, this delay already has cost the NIH $50 million in funding for the first six weeks. Parkinson's research is being hurt every day, right now. If the stalemate continues, this cut in NIH funding could last throughout 1996. This could require a reduction of as much as $1.1 billion, cuts or a freeze in non-competing grants and a reduction of up to two-thirds in the number of new and competing grants. The stalemate could cause the special $8 million neurodegenerative research initiative to be lost altogether. This would be tragic: this is our first concrete success in increasing Parkinson's research funding, which has been stalled at $26 million NIH-wide for six years. ACTION NEEDED: The Congress must hear from Parkinson's-related scientists and the Parkinson's community. We need you to contact your Senators and Representatives immediately to break the deadlock, fund the NIH at the House level and include the special neurodegenerative research initiative. Direct your call or letter to Senator __________ or Representative __________, ATTN: Legislative Assistant for Health, Senate/House Office Building, Washington D.C. The Capital Switchboard number is 202-224-3121. For further resources (fact sheets on the need for a Parkinson's breakthrough, the cost burden of Parkinson's on the nation, the Parkinson's research funding disparity, etc.) call the Network at (800) 850-4726. A set of "talking points," which can be used for your own personalized letter or phone call, follow. Do it now. TALKI NG POINTS/BACKGROUND INFORMATION Talking Points: I am writing/calling to urge you to support the highest possible funding for the National Institutes of Health in the 1996 Labor-HHS-Education Appropriations bill, including the Senate's special $8 million neurodegenerative research initiative. In a year when many programs are being cut or terminated by Congress, the House and Senate have made NIH a priority by proposing significant increases. Research in Parkinson's and other neurodegenerative disorders has been identified as deserving of special attention. The Senate Appropriations Committee added a special $8 million neurodegenerative research initiative, to be funded by an additional allocation to the budget of the NIH Office of the Director. This research is particularly promising right now and would respond to this investment by a long-overdue breakthrough in Parkinson's treatment. [Here you can provide further details about your research or your personal story with Parkinson's or the terrible cost of Parkinson's, which recently was estimated in Senate testimony as costing America in excess of $25 billion per year.] Please end the stalemate over the 1996 budget, and include in any budget you support the House-passed allocation to the NIH of $11.9 billion and the Senate's special neurodegenerative research initiative. Background: The House passed a 1996 NIH budget of $11.9 billion (an increase over 1995 of 5.7%, $642 million). The Senate Appropriations Committee passed a $11.6 billion NIH budget (a 2.7%/$301 million increase over 1995). The bill needs to be passed by the full Senate, reconciled in a House-Senate conference and sent to the President. The process is stalled by Republican-Democrat conflicts over provisions in the Labor-HHS bill unrelated to funding for NIH (including abortion restrictions and replacement of striking workers) and overall budgetary differences between Clinton and the Congress. Because of the budget stalemate and the Senate's failure to pass the Labor-HHS bill, funding for fiscal 1996 (which started on October 1) is operating under a six-week Continuing Resolution, which funds NIH at only 95% of its 1995 funding level. This is a loss of $50 million to the NIH from October 1-November 15. If the Senate fails to pass the Labor-HHS bill and a second, year-long Continuing Resolution is passed using the same formula as the first Continuing Resolution, NIH would be cut approximately $500 million below the 1995 appropriation. This would be a reduction of as much as $1.1 billion less than Congress has proposed. c:wpwin:act1027