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As I promised earlier, here's the story behind the parkinsn list.
 
The first sign that anything was wrong with me was a sore shoulder.  It
continued for months and nothing seemed to help it.  X-rays showed
nothing wrong.  Physiotherapy didn't help.  Finally, I was referred to a
rheumatologist who gave me a cortisone shot in the shoulder (ouch!).  The
shoulder was better for a while and then, a year later, another shot of
cortisone in the shoulder.  Again, relief for a while and a year later I
went back to the rheumatologist, this time with a sore shoulder and a
sore knee..both on the left side.  He decided it was time to get to the
bottom of this and sent me to a neurologist who had her own series of
tests for me.
 
In September, 1992, I was diagnosed with Parkinson's.  Further tests
eliminated other causes so I was still diagnosed with Parkinson's.  The
neurologist prescribed Selegiline twice a day and come back in a year.  I
read every book about Parkinson's that I could find.  Thank heavens that
a faculty member where I work suggested that I only read books that were
published within the last few years.
 
I didn't know anyone with Parkinson's.  I went to one support group
meeting locally and decided that was not relevent to me.  (It scared the
daylights out of me!)
 
I had joined a discussion list on the Internet called NURSENET owned and
operated by Judy Norris.  A friend of Judy's, Rina, was walking her dog
in a park in Toronto and met a woman named Margret, who was also walking
her dog.  Margret has Parkinson's and during their conversation asked
Rina if there was a discussion list on the Internet about Parkinson's.
Rina asked Judy.  Judy couldn't find one and posted a message to NURSENET
asking about one.  I replied that I would join if she found one.  Judy
suggested (pushed, prodded, urged) that I start one with her help.  So,
we (mostly Judy) put together a proposal for the University of Toronto
(McMaster University did not, at that time, have the necessary software
to house a discussion list).  The University of Toronto approved the
proposal and away we went!  Judy posted the new-list announcement in
several places on the Internet and we started to grow....
 
I have benefitted far more from this list than any effort I put into it.
I learn, not only about Parkinson's, but also about people...the vast
amount of caring and concern that is shown on this list has changed my
perception of Parkinson's....I now know that I share it with some very
special people...you.
 
Barb