 |
 |
Hi everyone, My name is Debra, I am from Edmonton, Alberta. My mother-in-law has PD, she is 54 years old. She was dx approximately 3 years ago. She has deteriorated very fast since then. She is almost wheelchair bound. She needs 24 hour care. She cannot talk anymore. A couple of months ago you were able to understand her sometimes, expecially first thing in the morning when she was perky, but now you cannot understand her at all. She does have a little sharp memory typewritter and that's how she converses. We would all be lost without it. Before she got sick she was a very mobile women. In her 50's she could run circles around me. She worked, took care of her husband (my husband's dad) and her severly handicapped son. I think sometimes she still thinks she's doing all that only its everyone else doing it. What bothers my husband and I sometimes is her behavior. For example, this spring she wanted a huge garden, she had one previous years. We told her we'll do half the garden. She typed to us "It's my Damn garden." We felt like saying then go out there and plant it yourself. We are the one's to do all the work. Alot of people said thats ridiculous, she shouldn't have no garden at all, but we couldn't do that to her. We do have our own home though and two children. My father-in-law is recovering from 3 brain operations, he had a blood clot on his brain. He was the one before that took care of her and their son. He cannot do it now until he gets stronger. My husband and I moved in to take care of Doreen while dad was in the hospital. She did alot of things for herself, now that dads home, she plays the duck! She acts like she can't do anything, although my husband believe the disease is getting worst. We have homecare comming into the house for her and dad in two 6 hour shifts. The night shift until 10:00 pm to help Doreen get ready and into bed as Dad cannot do it right now. It makes her mad sometimes that she has to go to bed. She cried to me one night when we were over that she has no choice, I told her "No you don't, its to bad, its the diesease, dad cannot help you to bed right now, you'll both fall, and mom, we bend over backwards to try and do everything else you want. It's just hard sometimes with her and when something doesn't go her way - she starts crying. We feel guilty. She's a very kind hearted woman, we love her very much. This is a terrible disease. People want to put her in a home, we say NO WAY. That would definitley kill her. She is not eating well anymore. She's loosing lots of weight. In 3 or 4 hours she might have a couple of bites of food. She now has to go on a feeding tube. She is very upset and depressed about that. Has anyone out there dealt with this issue yet. She went for blood test last week to make sure everything is normal to get the tube put in. She said to my husband "Hurry up and get it before I change my mind." They say she is not getting the full benifit of her medication because it is melting in her mouth. She takes Siment and permex. Excuse my spelling. I would appricate any feedback anyone has to this issue of tube feeding. I have been reading some of the logs to try and find information, but its taking me forever to get through the logs. Take care Debra ([log in to unmask])