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Hi Joyce,
 
Don't mean to sound like a bitter female but I think history backs me up.
Too many times the medical profession has told women that there was nothing
to be done with their particular problems except live with them.  So I say
keep pushing the doctors to find something to give you relief.  Maybe get
your GN & neuro working together to figure it out.
 
Nancy Walker
 
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>Hello Naomi:
>some five years ago, I noticed a definite declination of my "normal" daily
>me.  That was at a time in my PD life that my days were nearly normal so a
>real change was obvious.   Now, my "normal"  on days blend somewhat into the
>"off" days but still there is a marked difference.
>
>Having said all that,   my husband set up a video camera and we made a plan
>to tape the same actions in the same room at the same time each day.
>
>when we finished one month ( X # of days frm  P to P)   and put it in graph
>form, we realized that there was an absolute correlation of symptoms to my
>cycle.   So, again we did this for two more months and sure enough it was
>almost identical.    We called for a meeting with our neuro (Dr. Fahn at
>CPMC) in NYC and when it was mentioned he seemed to be interested.  When he
>found out that we had this tape,  he rushed the tape to the media lab in the
>hospital and called us a few days later to say how much he appreciated seeing
>it.   It seems that at that time, I was one of his youngest female patients
>(i was) 46 and he had noticed it or noone mentioned it to him.   A month
>later we received two calls,   one from Chicago and one from Washington DC
>telling us that they had seen the tapes and it was the most indicative piece
>they had seen.
>
>As a sideline...the UK has a younger PD population and they knew about it.
>
>What to do was the question
>NOTHING was the answer     HORMONES were out of the question as they
>interfered with the medicine
>BE AWARE of your calender was the final final of this and we have made our
>social or business plans accordingly since then.
>
>