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Thanks for posting this, Jerry. Zoinks! I definitely want to "go" tomorrow and see what it is like. Should be very interesting -- and perhaps very alarming. I would encourage other folks to attend if possible. Joanna [log in to unmask] [log in to unmask] On Tue, 21 Nov 1995 [log in to unmask] wrote: > Robert Iocono and his Loma Linda team were to appear at 4:00PM est on AOL's > "CLINIC" on November 21. I was trying to get there when I saw AOL's > introduction. It stopped me cold, and I decided to write this instead. The > introduction, which some of you may have seen, reads as follows: > > "Attorney General Janet Reno is the latest public figure to announce she has > Parkinson's Disease. She, like Mohammed Ali and others, join the large number > of those afflicted with the disease in this country. Yet, says neurosurgeon > Robert Iocono, leader of Loma Linda Hospital's famed Movement Disorder Team, > Parkinson's Disease is practically beaten as a disease. He points to > Pallidotomy, the surgical technique he helped pioneer, and to radical drug > therapies and strict diet as weapons available to Parkie patients." > > I don't know whether the inaccuracies in this paragraph are the > responsibilities of AOL, of Dr. Iocono, or others on the Loma Linda team. > However, with "friends" like these, we have no need of enemies. There is no > surer way to turn off future funding for research on cures for Parkinson's > Disease, than to have a famed neurosurgeon in the field quoted as saying that > it is already practically beaten as a disease. > > If Dr. Iocono is not responsible for this quotation, I wish that those on > this list who are close to him would ask him to disavow it publically. If he > really is responsible for the comment, I just don't know what to say. > > While I'm on the subject, the article on Janet Reno in the November 27th > issue of TIME which arrived here today also confused the issue by the remark: > "..(Janet Reno) stressed that the condition is being controlled by medication > - and underscored the point by extending a rock-steady hand." As all of you > know, control of the tremor does not mean that the condition (PD progression) > is controlled. It surely wouldn't hurt for those of you who can, to write > TIME and comment on the fact that their report is misleading. I certainly > will. > > Jerry Gleason ([log in to unmask]) >