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I'm sorry this info won't be of any help to your friends, but just to mention that there are occasional remarks in the research literature about iron imbalance in the brain. It can only be discovered in tissue samples from surgery or in postmortem studies. I have wondered if iron is responsible for the dark color of the normal substantia nigra. I can only hope that someday a cure can be found for such a terrible disease. J. R. Bruman (818) 789-3694 3527 Cody Road Sherman Oaks CA 91403 On Thu, 14 Dec 1995, Kees Paap wrote: > Dear listfriends, > > A special request this time : > > I've been approached by some desperate parents....They have a daughter of 17 > yeaars who > suffers this severe disease and desperatey need help.They lost their son > nearly two years ago, at > a age of 15. > > This disease (Hallervorden-Spatz disease) causes an excessive iron overload > in the human brain. > It's a very rare disease. We desperately are searching for help and > searching for aswers to the > following questions: > > *1. Is there any cure available for this diease? > *2. Who has experience with this disease? > *3. Has someone experience with iron chelations, special with the drug L1? > *4. Where is the drug L1 available? > *5.Can magnetic field therapy be a serious option in this disease? > *6 Is there any role of heridity in this disease? > *7. Are environmental aspects of a possible influance of this disease? > > Please give us asap your reaction, to > [log in to unmask] >