 |
 |
In a message dated 95-12-09 13:52:25 EST, Joan Dykstra wrote: >if we want public support for >funding we may also need to get to share the horrors of unsuccessful >treatment >in late stage Parkinson's. I haven't yet seen that on t.v. or in the >newspaper. >How many of us knew to fear Parkinson's Disease before we were diagnosed? This is an Excellent point. Not only are the victims unaware of the horrors of this disease initially, but the public remains unaware even after repeatedly hearing of or seeing case after case. A lot of people think it's just an "inconvenient" tremor. This is what has always p---ed me off about the attention Alzhemier's gets in fund-raising drives because it's sequellae seem so dramatic compared to other neurologic disorders like PD, but, of course, we all know differently. Somehow we should be able to get the message across about PD without comparing it to other neurologic disorders. my 2 cents, Delana