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Thanks for those that responded to a previous post about questions
concerning my wife's upcoming hip replacement surgery.
 
Just a quick update and some brief info for those new to the
group since September. Patsy (PD for over 10 years, now 55 years old),
had total hip replacement on her right hip on Nov 28. That part
went well. We reduced her sinamet dosage some to try and
prevent dyskensia, BUT we overlooked a small factor. With her
getting an epidural, she was talking to the recovery room staff
10 minutes after the surgery was finished, so started the sinemet
again 1/2 a table of 50/200 CR ever 3 hours. Prior to surgery
she was on 1/2 a 50/200 CR ever 2 - 2 1/2 hours. Well, a
few hours of liquids and NO solid food produced what, in
hindsight was a build up of sinemet in her brain, just waiting
to get the lady in action. About 30 hours after surgery, she
awoke to the most severe dyskensia she had ever had. Thanks to
our daughter, a Family Practice Doctor, U.S. Army, who took 2
weeks leave to spend in the hospital, she grabbed the leg and
held on for dear life while negotiating with Doctors of various
types, insisting that a Neurologist get ther quickly, and paging
me to get back to the hospital, and DEMANDING something be done
quickly, kept my wife from dislocating the new hip joint.
About 2 hours later the introduction of knock out medicine,
an education of several nurses and a few doctors that had never
seen a dyskensia PD person, Patsy would awake about ever 30
minutes, more knockout, repeat as necessary. About after 8 hours
the cycle increased to ever couple of hours. It took about
22 hours before we felt safe to introduce more sinemet. Well
by then Patsy is totally wiped out strength wise, is sore in
ever spot. Well, that took 2-3 days to get back on track with
the recovery theopary procedure.
Of course, as she was in the hospital for a hip replacement
procedure, the insurance manual says on the 7th day thou shall
exit to a skilled nursing facility, even over the suggestion
by at least 3 attending physician that she stay longer.
The good side of this was observed by my daughter was, at
least I will not have to train a new staff each shift as she
had to at the hospital. The good side of the hospital stay
was she had worked with all the doctors to allow her to
order the meds as needed and not on the nurses trained rigid
schedule that they are used to.
Well, we are now at the skilled nursing facility, progress is
being made with mobility, O.T. and P.T., but we are facing
the fact that additional days are needed there before Patsy
heads home, BUT again the HMO nurse and her schedule of
services is dictating what is allowed. She has not admitted
such to me, but asking questions and getting evasive answers
or no comments tell me a lot.
Now to the reason of this post, have any of you got suggestions
of how to deal with the insurance company situation?
Our other daughter, a interpreter for the hearing impared is
now her doing the constant care at the skilled nursing facility
and will be here 1 more week, then our son comes for his two
week turn. Thanks to some great kids we feel like we are
overcoming a lot of that would not have been possible with
out someone there all the time.
I appreciate the need to control medical costs, BUT when
there are multiple complications such as surgery with PD,
it seems like there needs to be another chart to look at
or some other means to deal with those situations.
We have kept detailed notes and hope to write up some
suggestions for people who are faced with hospitalization
while contending with the PD situation. More on all that
later. Sorry this got so lengthy, BUT, the good part is
Patsy has NO more hip pain as before. She was almost unable
to walk at all the 2 weeks prior to the surgery, so good
things are happening.
Stanford Hospital, the doctors, nursing staff, skilled
nursing facility and OT and PT have all been great, just
flustered with the insurance situation.
 
Thanks ..   Have a great holiday season.
 
Chuck & Patsy Niggley    [log in to unmask]