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Dear Simon; I wonder if the service should not be offered on floppy's also for all the people who do not have a CD rom drive. What do you think?? That would also be less costly for a low volume initially. Sincerely , Henry Guttentag ( [log in to unmask]) You wrote: > >Hi, > >Update on the CD ROM of PD information on the Internet. > - I've had enough people express an interest to make it worth doing > more work on. > - I did an initial download of web pages, and there's about 5Mb of > stuff on the web so far. > - I have just mailed people running those web sites to ask their > permission. If you run a PD related web site and haven't got a mail > from me, it's either because: > - I mailed someone else on your team > - I don't know about your pages > Either way, it would be nice to hear from you! (copy of letter I > sent out is below). > - Problems I haven't solved yet are: > - How people can order the CD (i.e. getting money to me to pay) > - The cheapest way of doing it > >At the moment it looks like a CD will cost $35 of I can sell 20. But there >are thorny issues like risk, capital (I can't afford to fund this!), taxes, >P&P, etc. This is proving to be an education in commerce! > >As well as the web sites, I would also like to include anything PD related >I can get my hands on. Some people have already volunteered stuff >(thanks!), but if you have anything PD related in electronic form, I'd >really like to hear from you. There will be plenty of space on the CD. > >I hope to include the archives of the PARKINSN list on the CD. As well as >providing them in their "raw" form, I'll try and run some of our agents >over them to sort the wheat from the chaff. Does anyone have any objection >to me including the PARKINSN archives on the CD? > >Oh yeah - I think "PD CD" sounds like a good name. Then as updates arrive >they can be "PD CD 2" etc. Comments? > > >Thanks very much, and a Happy Christmas to you all, > > >Simon > > > >PS - It would make everyone's (especially mine!) life easier if when >creating web sites, authors could please please please on every page: > - include a pointer to the top page of their collection > - include a single identified person to be mailed to about the site >I realise it is hard work writing web sites, but at the moment I must admit >to feeling a little overwhelmed by the amount of material :-) > > >------ begin note I sent to people running web sites ------- > >>I would like to create a CD ROM of all the Parkinson's Disease related >>information on the Internet. I have done an initial trawl of web sites and am >>now trying to contact the people who run those sites to ask their >>permission to >>carry their pages on this CD. >> >>I am producing this CD ROM so people who cannot access the Internet (or have >>limited access because of cost/security reasons) can benefit from the work >>that we have all done in putting Parkinson's information up. >> >>My intention is to run a program called "Web Whacker" over your PD related >>pages which will copy all those pages onto a disk. I will then add: >> - the archives of the PARKINSN list >> - anything else I can get my hands on >> >>And produce a CD ROM of PD information (provisionally called "PD CD") >> >>I intend the information on the CD to be covered by a copyright which says >>something like: >> - you can copy all this information as much as you want >> - as long as you don't claim it as your own >> - and credit the original authors >> >>I feel this approach satifies the general wish to inform as many people about >>PD as possible, although if you wish to include your own restrictions I will >>of course comply. >> >>Therefore: >> - would you mind if I copied your web site onto the CD? >> - are there any other (Non-web) sources of information you think >> I should carry? >> >>To help you locate the information I wish to copy, one of the URLs I found on >>your site is: >> >><insert their URL here> >> >>I have no idea how much the CDs will cost to end users at the moment, as >>demand is unknown - I think I will have to get them made on demand, which is >>quite expensive. At the moment I am investigating how easy all this is to do. > >--------- My opinions are my own, NIP's opinions are theirs ---------- >Simon J. Coles Email: [log in to unmask] >New Information Paradigms Work Phone: +44 1344 778783 >http://www.nipltd.com/ Work Fax: +44 1344 772510 >=============== Life is too precious to take seriously =============== >