I was diagnosed with PD ten years ago, and I've been on Sinemet for 8 or 9
years. (currently I take 1/2 Sinemet 25/100 every 3 hours; also parlodel and
eldepryl. ) For the last 2-3 years the side-effects were very
bad--especially a dyskinesia I can only describe as writhing or squirming. I
tried most of the usual drugs in various combinations, but nothing was
working. On. Nov. 1, on my neurologist's recommendation, I had a right
pallidotomy, with, I think, excellent results. The dyskinesias are gone. I
still have occasional tremor, also difficulty in turning over in bed,,
occasional drooling. But I've regained weight and all sorts of
skills--zippers, shoelaces, panty-hose putting on, writing, typing, etc. I
feel like a semi-normal person again.
I am considering writing about my pallidotomy at some point--after
it's had more time to prove itself. I am interested in others' experiences
with the surgery, as patients or doctors. I also would like to access the
archives on it. I would also like to hear more about thalamic stimulation
and related procedures.
---------- It seems to me that most members of this group continue to
regard Sinemet as a wonder drug. It's my feeling that it should be used
only when other drugs no longer are effective--since the honeymoon is
limited. --Nina [[log in to unmask]].
>From: Barbara Patterson
>To: KingN
>Subject: Welcome
>Date: Wednesday, December 20, 1995 10:29PM
>
>Dear Nina:
>
>
>Welcome to the PARKINSN list. Please send a message to the list
>(if you want to) introducing yourself and any Parkinson's-related
>topics you would like.
>
>Let me introduce myself. I am a secretary for six faculty members
>in the School of Nursing, McMaster University. In September, 1992, I was
>diagnosed as having Parkinson's...hence my interest in this list.
>
>This is my first attempt at being owner of a list so please
>bear with me.
>
>I have appended the guide below this message. I hope you enjoy
>your involvement with the PARKINSN list.
>
>Barb
>
>
>cut cut snip snip cut cut snip snip cut cut snip snip cut cut
>----------------------------------------------------------------
>KEEP KEEP KEEP KEEP KEEP KEEP KEEP
>
> The PARKINSN Guide
>
>HOW TO POST A MESSAGE TO PARKINSN:
>
> send mail message to: [log in to unmask]
>
> When you post a message, it is helpful if you
> sign it and add your email address. As example:
>
> Barbara Patterson ([log in to unmask])
>
> Many PARKINSN subscribers have mail headers which don't
> display the origin of the note.
>
>HOW TO INTERACT WITH THE LISTSERVER:
>
> To talk to the listserver, you want to send mail to the
> LISTSERVER, not to everyone on PARKINSN. Send a regular
> mail message to:
>
> [log in to unmask]
>
> and in the body of the note, use any of the following
> commands:
>
>NOTE: Don't include the explanatory comments in ( ) below.
>
>SUBscribe PARKINSN Yourfirstname Yourlastname (Join the list)
>
>SIGNOFF PARKINSN (Leave the list. Your name is not required)
>
>REView PARKINSN (Who else is on this list? Get a list of
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>
>Sort review list in a certain order:
>REView PARKINSN by country (List sorted and counted by country)
>REView PARKINSN by name (List sorted by name. Last, then first)
>
>SET PARKINSN REPRO (You get a copy of your own mail to PARKINSN)
>SET PARKINSN NOREPro (Set it back to NOT getting a copy of your
> own mail)
>
>SET PARKINSN DIGests (You get the day's mail in one large note
> with a table of contents, rather than note
> by note. A good option if you don't
> like dealing with large quantities of
> incoming mail.)
>
>SET PARKINSN NOMAIL (Temporarily stop getting mail from
> PARKINSN. You're still subscribed.
> Useful when going on vacation)
>
>SET PARKINSN MAIL (Start your PARKINSN mail coming again, or if
> your mail= option is set to DIGests, start
> your mail coming note by note again)
>
>SET PARKINSN CONCEAL (If you don't want your name to appear
> on the REVIEW list)
>
>INDex PARKINSN (Get a list of files you can retrieve from
> the PARKINSN listserver)
>
>GET PARKINSN filename (Get a file from the PARKINSN listserver)
>
>Query PARKINSN (Review your optional settings on PARKINSN)
>
>HELP (Get a brief summary of listserv commands)
>
>INFO REFCARD (Get more information on listserv commands)
>
> - - - * * * - - -
>ABOUT ARCHIVES:
> All contributions to PARKINSN are automatically archived
>every month. You can get these archive files by requesting the
>log file you want. As example, to get the November and December
>1993 logfiles, you would send a message to the LISTSERVER and in
>the body of the note, you would type:
>
>GET PARKINSN LOG9311
>GET PARKINSN LOG9312
>
>
>The 1994 contributions are automatically archived every WEEK. As an
example,
>to get the January, 1994 logfiles, you would sent the following message
>to the listserver:
>
>GET PARKINSN LOG9401A
>GET PARKINSN LOG9401B
>Additionally, the PARKINSN archives reside on the University of
>Toronto gopher and can be viewed and retrieved from that site.
>
> For those of you who can gopher, at your system prompt type:
>
> gopher vm.utcc.utoronto.ca
>
> then choose #17 - LISTSERV archives
>
> - - - THE END - - -
> To communicate with the list manager, send mail to:
>
> Barbara Patterson ([log in to unmask])
>
>============================================================================
>Barbara Patterson
[log in to unmask]
>HSC 2J22 905-525-9140, ext. 22403
> School of Nursing
>============================================================================
>
>
