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PLEASE SUPPORT PATRICK MARTIN IN THE SURVEY HE IS COMPLETING AS SHOWN BELOW: THANKS To: Multiple recipients of list PARKINSN <[log in to unmask]> From: "PATRICK J. MARTIN" <[log in to unmask]> Subject: Resubmitted survey proposal Date: Fri, 29 Dec 1995 17:28:34 EST The drug menus reported by our members are varied (understatement of the millenium). There are about 2 dozen drugs selected for parkinsonism alone. When we add the drugs being prescribed to mitigate the depression, constipation, mouth dryness, edema, dizziness, cramps, heartburn, and such that tag along with PD and its symptomatic treatment, we reach the 3-4 dozen level. Now add the drugs used for other medical indications such as diabetes, hypertension, hypothyroidism, menstrual difficulties, and other human ailments. Anyone care to guess the grand total?@b Our doctors seem to have their favorite packages or use a randomizer to help us. We are sometimes allowed to participate in the selection when we come across as knowing something about ourselves and the menus. Some doctors even seem to be interested in what their peers are doing.@b I propose (and volunteer) to assemble the data for the 900+ Club participants into a usable database that can be manipulated to possibly draw some inferences or conclusions about PD drug menus. I submit the format below for your contribution of your data and experience.@b ------------------------------------------DATABASE FORMAT----------------------------------------@b Name:Patrick J. Martin@b e-Mail:(73121.12153@@compuserve.com)@b Zipcode:95126-1546@b Age:69@b Weight:175@b Sex:Male@b Years Parkinsonian:9@b Years Medication:6@b Medical Indications:@b 1.parkinsonism@b 2.hypertension@b 3.tremor@b Medications:@b NAME DOSAGE(mg X daily frequency)@b 1.Procardia X L 60 X 1@b 2.atenolol 50 X 1@b 3.Sinemet CR 50/200 X 3@b 4.carbidopa/ldopa 25/250 X 3@b 5.selegiline 5 X 1@b 6.amantadine 100 X 1@b 7.Vitamin C 500 X 2@b Comments:@b 1.Procardia XL is a calcium-channel blocker for hypertension@b 2.atenolol is a beta-blocker for hypertension@b 3.bromocriptine worked for a year before I developed an unbearable low back backache@b 4.Permax tried but was not able to titrate out of the akinesia that resulted@b 5.selegiline reduced to 5mg from 10mg/day to bring heartburn down@b 6.tremor is my biggest problem@b 7.bradykinesia signals time for dosage@b (Comments should include, but not be limited to, your experiences with the FDA-approved drugs and alternatives such as NADH, melatonin, nutritional supplements. We are looking for both positive and negative comments since this is a unique contribution to be made to the PD literature. Your history of drug menu changes is also important. Don't forget to include your observations on adverse reactions and interactions.) @b ------------------------------------------------------------------------ -------- -----------------------------@b Use your word processor to delete my data; substitute your own and post it to the List. I will pick it up for the database. If you want anonymity, send it to me directly and I will send you an identifier for your use. Data will be aggregated and individual identities will be protected. If we all choose to post it to the List, others may be better able to draw inferences and conclusions by preparing databases better than the one I have in mind.@b Let's give it a try!@b Pat Martin 69,9 (73121.1253@@compuserve.com) 28December1995 This is a resubmission of my proposal so I would like to add a few clarifications: 1.)The format is SUGGESTED -- feel free to respond in any manner that will incorporate the requested data 2.)State birthdate and dates of diagnosis and beginning of medication instead of 'YEARS' 3.)All data will be made available to the List -- except for identification information of those submitters who request anonymity. 4.)I hope to supply each submitter with an individual profile of their drug menu and adverse reactions and interactions.