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Alan, I have seen reference to Loma Linda having a good PD program. I don't know if you are close to there but if your not you could still call them and ask them to give you a name of a neurologist who specializes in PD closer to you. Good luck and God Bless!! Nancy Walker [log in to unmask] At 08:46 PM 1/18/96 -0800, you wrote: >My wife's neurologist told her that he couldn't help >her any more. That she has all the meds that she >should have. She takes 4 sinemet 25/100, 1 eldyprel >2 artane, 3 klonopin a day. The first dose in the >morning lasts about 4 hours. the next doses of sinemet >lasts about 3 hours each. As you can see, she is in >the off state 10 to 11 hours a day. The doctor says >that the sinemet causes her left hand and foot to have >tremors. The artane is for the tremors,he won't increase >it either. > >She wakes up with foot cramps almost every morning. >The klonopin is to help with that, but doesn't do much >good. When she asked what to do about the pain, he said >"take an aspirin". The pain is so bad that she can hardly >walk until the sinemet kicks in. > >On the meds, she has tryed sinemet cr, but it causes to >many side effects. Permax made her gums bleed. I know >that alot of you take alot more sinemet then she does. >I have increased her sinement to 6 a day on some days, >which helped. Also 3 to 3 1/2 artanes. only can do that >so often because of her lower perscription amount. She >works much better on that amount. > >I belong to an HMO so I can,t change doctors that easly. >Is there any expert PD doctors in Southern California >that any of you know of that I could go see? I know >that I will have to pay out of my pocket, but she needs >help? If I sound pissed off, I am!!! I just don't know >what to do any more. >I guess I'm starting to ramble, sorry. I may write more >later > >Alan Michael > >