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To Alan Michael: Two places to look for more info if you haven't yet: Info and Referral Center at Good Sam Hospital 637 S. Lucas Ave., Suite 501 LA, CA 90017 (800) 8411-8765 NPF West Coast Office 15840 Ventura Blvd. Suite 215 Encino, CA 91316 (818) 981-2233 Good luck; Joe. J. R. Bruman (818) 789-3694 3527 Cody Road Sherman Oaks CA 91403 On Thu, 18 Jan 1996, alan michael wrote: > My wife's neurologist told her that he couldn't help > her any more. That she has all the meds that she > should have. She takes 4 sinemet 25/100, 1 eldyprel > 2 artane, 3 klonopin a day. The first dose in the > morning lasts about 4 hours. the next doses of sinemet > lasts about 3 hours each. As you can see, she is in > the off state 10 to 11 hours a day. The doctor says > that the sinemet causes her left hand and foot to have > tremors. The artane is for the tremors,he won't increase > it either. > > She wakes up with foot cramps almost every morning. > The klonopin is to help with that, but doesn't do much > good. When she asked what to do about the pain, he said > "take an aspirin". The pain is so bad that she can hardly > walk until the sinemet kicks in. > > On the meds, she has tryed sinemet cr, but it causes to > many side effects. Permax made her gums bleed. I know > that alot of you take alot more sinemet then she does. > I have increased her sinement to 6 a day on some days, > which helped. Also 3 to 3 1/2 artanes. only can do that > so often because of her lower perscription amount. She > works much better on that amount. > > I belong to an HMO so I can,t change doctors that easly. > Is there any expert PD doctors in Southern California > that any of you know of that I could go see? I know > that I will have to pay out of my pocket, but she needs > help? If I sound pissed off, I am!!! I just don't know > what to do any more. > I guess I'm starting to ramble, sorry. I may write more > later > > Alan Michael >