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In a message dated 96-02-02 06:46:05 EST, you write: >The unusual symptom is e severe pain affecting her throat, jaw, and tongue. >She >has 2 or 3 episodes of this each day For Bob Howard espcially: Yes, my CP experiences tongue pain. It is weird and very bothersome. I think there's dyskinesia in the tongue itself because he moves it quite a bit when he has this problem. Not sure if he feels it's due to the disease or the meds. I will ask. I have posted the quesiton here before about tongue involvement but no one responded. Delana Vaughan