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All: I have been asked if I can find people who have experienced or are currently experiencing "End Stage PD". Obviously these are care partners or children/adult children of Parkinsonian parents. The person requesting this information is a nationally published writer in the field of health care policy. More important is that her husband was diagnosed with a combination of PD and AD about three years ago. He died last December. She made some very interesting observations to me: 1. Hospice treats the dying not the medical profession (non-hospice doctors) 2 Did you ever try to get a neurologist to make a house call? (see 1 above) 3. Home health care is very physically difficult, financially draining and emotionally bankrupting. The list goes on. I had to tell her as a patient and possibly eventual "End Stage PD" person that I found this topic difficult. So I am asking members of this list if they can help or if you know someone who would be willing to help. There is almost nothing written on "End Stage PD" and this is an opportunity to help the PD community. When I say PD I mean PD and the all the PD+ diseases also. Please forward your/their name, address, phone number and preferred contact time to me directly at [log in to unmask] and I will pass on the information. All names will be held in strictest confidence. Regards, Alan Bonander Age 55, Diag 11 yrs, liquid meds, pallidotomy [log in to unmask] PS: Because the information gathered is for a project outside of this list, I would expect the information will not be shared on this list.