Colleen,
It is my opinion that you should do 2 things:
1. You need to seek out a good neurologist that specializes in PD.
2. You will need to become well enough informed about PD tbat you
can think for yourself.
With regard to 1. above it is not even sufficent to have as your primary
physician a neurologist. He should also be very familiar with the latest
information about PD. I would suggest that you call UPF or APDA for a
referral. If you call or write to any of the 4 national organizations,
they will send you a whole packet of stuff for free.
With regard to 2. above; since there is no cure, and since the medical
profession can only treat the problems symptomatically, and since there
are many forms or kinds of PD and they don't have an explanation for
them, I think it is up to the patient and the caregiver to make the
decisions. In a few weeks or months you can get up to speed and it will
not seem so daunting.
UPF United Parkinson's Foundation
833 West Washington Blvd.
Chicago, Illinois 60607
312-733-1893
APDA The American Parkinson Disease Association
1250 Hylan Blvd., Suite B
Staten Island, NY 10305
1-800-223-2732
Take heart. You are not alone.
---Milo
Milo V. Anderson, Ph.D.
Box 417
Angwin, CA 94508
voice 707 965 2508
fax 707 965 3148
e-mail [log in to unmask]
