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In message <[log in to unmask]> Parkinson's Disease - Information
Exchange Network writes:
> Dear Group:  I myself do not suffer from Parkinson's but my dear father
> does.  He has been diagnosed for about 3 years and he is getting worse i
> think everyday.  He is on medication.  I am not exactly sure what.  But I
> do know he does take Sinemet(not sure how to spell it).  I guess I joined
> this group because I am really trying to understand why he is progressing
> so rapidly.  He goes to see a internist I do believe once a month.  They
> live in a small town in northern Ontario, so therefore he goes to Sault
> Ste. Marie for treatment.  I could be in denial, because my father and I
> are very close, but I wonder if the doctor is giving him the right
> medications and also just because he is 73 that maybe he is too old to
> try to help him .  I know this is a strong accusation and I think deep
> down it is just my fears and sadness talking.  If anyone would like to
> reply, I could use all the input I can get.  I know my father will be
> real proud of me, to hear I am taking an active roll to help him.
> I know I should have included more info on his condition, but I really
> just wanted to get this off my chest.  It has been bothering me for some
> time now.   Thank You  Colleen
>             [log in to unmask]
Colleen - Welcome to the group. I know how you feel. My wife, age 76 has had PD
for 10+ years. At first it was a minor inconvenience, but I have to report that
it has been relentlessly progressive. The last 3 to 4 years have been especially
difficult. She has marked gait impairment, severe dyskinesia (unwanted extremity
movements), impaired speech, and a peculiar throat/face pain that is not
supposed to be part of the disease. We steer a very VERY narrow course between
too much and too little Sinemet. Sorry this note is not very uplifting, but I
believe it to be realistic. Good luck to you. Hang in there. Bob Howard
 
 
Bob Howard, occasionally formally known as
Robert B. Howard
e-mail  [log in to unmask]
1320 Wisconsin St. #411
Hudson, WI 54016
Voice Phone (715)386-3596
FAX (715) 386 8589 (Must call first)