 |
 |
PLEASE FORGIVE me if you may have received this message already. I had misaddressed it and I got some message that I no longer had access to the PARKINSN list or listserv. Now that my access is restored here is the message again, in case it didn't get posted. My sincere apologies for irritating anyone! I posted the info re the Santa Fe,NM site symposium and for those who are thinking about getting a host or hosting the event yourselves, I would like to encourage you to do so, but I think it's too late now! It's much easier than you think! I found the people who help you to organize the event to be extremely nice and organized -get more info from them -Taking Control of Parkinson's Disease hotline (212-880-5336). The info you get from them will also be useful for other events you might want to host, e.g., how best to contact the media re the event, etc. My experience with the local hospital was excellent. We had a meeting and discussed what their responsibilities were as well as what our local group's were, hence no duplication of efforts. They offered to put an ad in our local paper, and our group put notices in our local newspaper, the throwaway paper-the calendar listings which are free as well as in our newsletter. We also contacted local radio & TV stations which provide for public service announcements. In addition, we have notified the press through a Media Alert, to try and cover this event! After all, so many don't know about Parkinson's Disease. Since our group is an independent group, i.e., not affiliated with any of the national organizations, we thought it would be nice to put together a PD RESOURCE FLYER for those who attended the symposium. We were thinking of including info on local support groups; the national organizations to get info and literature; an annotated bibliography of good books on PD; info and instructions on how to get on this list and caregiver list. If you have any other suggestions, please e-mail me at [log in to unmask] Once I compile all this info, I'll post it-and perhaps you can use it (or at least parts of it)! (I'd really appreciate any recommendations on PD books and a brief description of it!) Thank you all, and forgive me if I took too many K's in my posts. Wendy (CG for John 69, +9 years), Santa Fe, New Mexico P.S. I've noticed some posts on established sites for the symposium-what I am curious about is that many are posting the beginning and end time of the satellite broadcast only. At our site we are planning for 15 minutes beforehand to introduce the moderator, the purpose of the symposium, etc., and then after the broadcast we are planning to have 30 minutes for a question and answer period. Perhaps you might want to consider the "extra" time before and after??.