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I am a quiet observer as well, and have the same sentiments. My mother-in-law does not have access to email so I print her uup the responses and a package of them to her once a week. It is hard for her to respond since the delay time is so great (she is reading responses from the beginning of Feb). But I have seen a change in her attitude, knowing she is not alone and understanding better what she feels. She numerously said to me, "My body is a stranger." I believe that PD had taken control of her, now I feel she has begun to take control of it. If this is not the purpose of the list, I don't know what is. It might need to be fine tuned, but I wouldn't change it. Hopefully one day, I will be knowledgeable enough, and she will have the accessibility to give back to the list what it has given to us. Thanx. Deanna