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In message <[log in to unmask]> Parkinson's Disease - Information Exchange Network writes: > > 1. Pain in the throat/jaw/tongue. She has had this for 3-4 years > > with > > variation in severity. It is not supposed to be a part of PD, but > > it > > *reponds to Sinemet.* Various specialists have been puzzled by > > this, > > but the best explanation (to me) was from a pain specialist who > > believed it was due to PD-invoked throat muscle rigidity. A muscle > > relaxant, Klonopin, has given some relief, but it also produces > > sleepiness, which at times is welcome. > > > > > > In any event, I would like to hear from any of you who have had > > any > >comparable experiences. I shall keep tuned to the network and learn from you > >all. I do intend to write a note soon about doctors and chronic disease, > since I > >have seen so many postings that indicate dissatisfactions with docs. Some > are > >valid, others are at least explicable. > > > > Hang in there - Bob Howard > > > > > > > >Bob Howard, occasionally known formally as: > >Robert B. Howard <[log in to unmask]> > >1320 Wisconsin St. > >Hudson, WI 54016 > >Voice phone (714) 386 3596 > > > Bob, > > Fuad starting complaining of this exact same type of pain in December. It > started when the neurologist lowered his Eldepryl. He had trouble eating > for a couple of weeks. He now complains that it is very painful to yawn > (which he does a lot), but after he stretches his mouth wide a couple of > times the pain is relieved. Last week he mentioned about the tongue hurting > when he moves it a certain way. I believe that it is improved now that Fuad > is back up to two Eldepryl a day. > > Has your wife tried facial exercises. Does she take Eldepryl? We have found > that Fuad reacts adversely to muscle relaxers. Especially since the stroke. > They seem to nulify the anti-Parkinson's medications and they stay in his > system for days. > > Barb CG for Fuad PD 61/3+ > Greensboro, Maryland > [log in to unmask] Barbara - Thanks for your message and for your interest. Lorraine took Eldepryl several years ago, but it totally abolished her appetite with a consequent weight loss of abou 30 lbs. She has tried facial exercises with dubious results. She takes a muscle relaxer, Klonopin, that may or may not help the pain, but it surely gives her a good night's sleep, which had been a big problem before. Thanks again for sharing your experiences. Bob Howard Bob Howard, occasionally known formally as: Robert B. Howard <[log in to unmask]> 1320 Wisconsin St. Hudson, WI 54016 Voice phone (714) 386 3596