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Subject: RE: severe cramping Deborah.... Years ago, before I actually'd been dx'd with PD, (You know the MD's routine.. "You're too young for Parkinson's so there's nothing wrong with you") I had terribly painful cramping on what my family called, "Barb's bad side." "Bad" meaning it seemed to have a life of it's own and that "life" included awfully painful cramping. Believe it or not, my dermatologist (not knowing I had PD) suggested vitamin E for the cramps. And I had outstanding results with it. (Unfortunately, vitamin E hasn't made me a better typist or spelller!) <grinning> I've followed the regimen below for about 10 years and the ONLY time I get any cramping at all is if I forget to take the vitamin E even so much as one day.. Start with 2000 mgs vitamin E per day.... 1/2 in pm and 1/2 in am... for one week. IF cramps are lessened, but not stopped, continue on at this dosage for another 2 weeks. Then drop the daily dosage to 1600 mgs for one week. If no cramping after the week, drop the dosage once again to 1200 mgs. for one week. And if there's continued non-cramping, drop daily dose to 800 mgs. I've stayed at 800 mg. of vitamin E for about 10 years, taken with lunch every day. Sometimes I've run out and having missed a day or two before getting to the drug store to pick up more, the cramps DO come back. SO this isn't a "cure." But if that happens, I just up the dosage to 1200 mgs. for a coupla days and the cramps stop immediately. ---------- From: Parkinson's Disease - Information Exchange Network on behalf of DEBORAH BELLMAN Sent: Saturday, March 23, 1996 9:20 PM To: Multiple recipients of list PARKINSN Subject: severe cramping I am interested in any help/info anyone can offer re. severe dystonia type cramping. my mother, who has been diagnosed with Parkinsons for 9 years, suffers everyday for prolonged periods from major muscle cramps, mainly up one side of her body. she takes sinemet and sinemet CR and valium and Permax and Prozac. She has tried many variations on timing and medication but seems to be getting worse, and the pain is unbearable. Other people I know with PD don't seem to have this same situation. Any ideas? Feedback would be great. She feels life is not worthwhile and it is a most awful situation. thank you... [log in to unmask] --WAA10353.827648083/upsmot03.msn.com--