 |
 |
David, >I have been on and off this list(depending on available time) for just under >a year , lurking most of the time.I am 67 and diagnosed with Parkinsons >1992.I am rather surprised that there seems to be little interest coming >from the UK in Internet usage by Parkinson disease sufferers or their >carers.Any observations on this topic would be welcomed particularly from UK >residents.I personally find this excellent list very helpful even although >some of the material obviously only applies to the States. Heh. I have mentioned the Internet and this list in particular many times - last year at the annual branches meeting, and in a paper sent to PDS HQ, to mention just two. I think the PDS (UK) is too screwed up internally to get anything done with the Internet on a corporate level. However, I hope to have a stand at this years SGM (in Bristol) which might raise the Internet's profile. I'm also doing web sites and CDs when I have time. If more people could mention the Internet to other people in the UK, that would be a really great help. Talk to council members. Write/phone head office (if you want contact names I can help). Convince them that this Internet thing is something they must pay attention to. I've even offered to do most of it for free for them - their total investment would be negligable. PS - I know PD CD is about 1 month late at the moment. My real job is becoming overwhelming, but the good news is we have developed a Web-building application for a client which I think I can easily turn to PD use very easily. But I am going to relax for couple of days before I start on that. (I saw the end stages of the total eclipse of the moon on my way back from work :-( ). Simon --------- My opinions are my own, NIP's opinions are theirs ---------- Simon J. Coles Email: [log in to unmask] New Information Paradigms Work Phone: +44 1344 778783 http://www.nipltd.com/ Work Fax: +44 1344 772510 =============== Life is too precious to take seriously ===============