From: [log in to unmask] (Rosemary Russell-No.Little Rock,Arkansas)
I can't believe the response I' ve received from my message. You
have no idea (or maybe you do) how much it helps to communicate with others
who understand PD. I am especially touched by the concern and sincerity of
everyone. Thank you all so much...especially Joe, Hugh Peoples, Seese, Ron
R., Sherri Cave, Nancy, Kathie, & most of all, Barb. To answer a few
questions, I have done a great deal of research & attended a few seminars in
the last year and a half and learned a lot--mainly that many things depend on
your own particular doctor's view. Thus, we are one group that must stay
self-informed on the latest medicines and research.
As for as a YOPD group
in my area, there is none that I know of in Ark. However, my neurologist
wants me to start one. I'm currently involved in writing my thesis, but am
really interested in starting one when I'm through--hopefully by Jan. 1997.
I hope no one thought I was feeling sorry for
myself...I really havn't reached that point-yet! Actually, I feel somewhat
lucky not to have been diagnosed with one of many things which are much
worse. ( I may feel different on down the road.) What I mainly feel
concerning the disease is frustration-that my body can't do what my mind
wants to do. Regarding the fatigue/weakness, my Dr. says it is very
common-esp. with young-onset PD. I think it may be partly because it is so
difficult to adjust if you are younger and have been a very active, always
on-the-go type person. Anyway, I hope I can
contribute to the list at times, and help others as you have all helped me.
Thanks again- Rosemary Russell ([log in to unmask]) NLR, Ar.
