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Jeremy
Hi. I wrote an article for the UK YAPP&RS (the young onset group  within the
Parkinson's Disease Society) quarterly magazine, the YAPMAG :-). I called it
"The SuperHighway : Hype or Hope for YAPP&RS"

I identified five main areas where we can benefit:-

1.      contact with a vast number of people who share a problem, you find you
are not the only sufferer and to read how others are coping is important;

2.      a meeting place for those of us who find that socialising with real
people is difficult because of the effect of PD or the drugs. It breaks the ice;

3.      Access to worldwide experience and information on PD, including PD
support groups, the latest research, opinions, medications,treatments,
legislation, etc, etc.

4.      A major worldwide source of actual patients for neurologists,
researchers and students to consult when looking for symptoms, trends,
reactions to medication, etc., etc.

5.      A major opportunity for researchers to exchange information and
(hopefully) avoid duplication and unnecessary research,  (if the drug companies
didn't get in the way!).

The article was supported by a few examples from my travels around the
internet/world wide web. Happy to let you have a copy if you would like one.

It is ironic but reaching out across the Atlantic you have made contact with a
world-wide community that has limited parallels in the UK.

Bob Hills (44/4)
Leeds, England
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"Ultimately more complex than any machine ever invented, the brain is the
essence of what makes us human. Its blood vessels nourish three pounds of
delicate tissue. Its billions of cells mysteriously regulate the body, learn
from a lifetime of experiences, and summon the memories and thoughts unique to
all of us,"
Joel Swerdlow, National Geographic, June 1995.