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<---- Begin Forwarded Message ----> From: [log in to unmask] Subject: Re: NPF doctor disappears To: [log in to unmask] Cc: [log in to unmask] Regarding the person who travelled to Miami with a nurse only to be stood up by the doctor at the National Parkinson Foundation (NPF) with whom she had an appointment, at a cost of $3,100 down the drain, I would do the following: 1. Write the HEAD of that organization a letter outlining the facts and making a request for a refund of the funds. I would be polite but firm. Outline the contact you've had with them over the past two years. Mention that thousands of Parkinson's patients and other interested persons and health professionals on the Parkinson's Disease Information Exchange Network on the Internet are following your case and are anxiously awaiting its outcome. Have someone write the letter for you if you don't feel you're a good letter writer. Copy your congressman or woman, the Attorney General of Florida and an attorney. But don't even bother to put the ones to the AG or the attorney in the mail. If you don't have an attorney just make up a name and put "Esq." (for esquire - formal name for lawyers used in correspondence) after it. 2. Wait about ten days or so and then write a letter to your congressperson, again outlining the facts and enclosing a copy of your pervious letter. Mention what response, if any, you got from NPF. No need to copy anyone on this letter. A member of the congressperson's staff will write or call you and tell you they are looking into it. They will contact NPF who will respond in short order. Any organinzation like that that's regulated by the Feds or relys on them for funds, no matter how remotely, will have a relatively highly placed person responsible for responding to "congressionals" as a top priority. They're gonna have to supply an explantion and the only one I can think of to use, other than to apologize and send you the money, is to call you a liar. I don't think they'll do that. I would be surprised if this didn't get you at least some of the money back. I worked for a federally owned corporation, the Resolution Trust Corporation, for fours years and learned that people who effectively use their congresspersons for personal problems, even remotely related to Federal matters, usually get their way if there is ANY way it can be done. Forget about the Senators unless you know one, or know someone who knows one, or you know one has a particular interest in the issue at hand. They're not running for reelection every two years. And an attorney is just going to cost you more money. You can get the names and addresses of the head of the NPF and your congressperson at the library, or maybe just be requesting it over this List. (I have utilized my congressman's services a number of times over the years and it works. Also, for health insursance problems cc your state insurance commissioner and state senator or representative on your letters PLUS the congressman - and make sure to write to someone HIGH up, the CEO or President are best.) I would be happy to draft the letters for you if you don't feel you're up to it and don't have anyone who can help. But you would have to give me all the details of what has happended over the past two years. It might be better to have someone near you who can listen to your descriptions write them, but E mail me at [log in to unmask] if you want my assistance. B. Bruce Anderson (50yrs, 1yr PD) <---- End Forwarded Message ---->