 |
 |
At 06:46 14/04/96 -0400, you wrote: >Hi! my name is Jeanne Deuschle and I am writing for my husband Kurt, who=20 >is 73yr. and has had PD for 12 yrs.. Although Kurt has many of the most=20 >common PD symptoms, tremor etc. they are relatively mild when compared to= =20 >the significant problems he has with autonomic nervous system dysfunction= =20 >(manifest by orthostatic hypotension and a neurogenic bladder) JEANNE: Sounds like your husband has Shy-Dragers Syndrome (aka Multiple System Atrophy). The orthostatic hypotension and neurogenic bladder are the two most prominent symptoms that caused Jack's neurologist to diagnose him. Let us know if you would like more info. Jack and Joan Martin, Oshawa, Ontario, Canada > > > = =20 > = =20 > = =20 > = =20 > = =20 > = =20 > = =20 > = =20 > = =20 > =20 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > AT&FE1L1V1&C1&D2S0=3D0S7=3D90 m mmAT&FE1L1V1&C1&D2S0=3D0S7=3D90 =FBs=DDd= =E3 >=E6=FBAI=BAv=BF > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >and learn how others have coped=20 >. We are very optimistic and hope and pray for a "cure" before too long! > >It is a good feeling to know that there are others who are simpatico to=20 >our PD trials and tribulations > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >=20 > > > > > > > > > > > > > > > > > > > > > > > > > Hi! My name is Jeanne Deuschle, and I am writing for my husband Kurt >who is 73yr. and has had Parkinson's for 12 yrs. He is on 650mg. of=20 >Sinemet daily ..off deprenyl now. Although Kurt has some of the common >PD symptoms of tremor,etc. they are mild when compared to his more=20 >difficult problems... autonomic nervous system dysfunction (manifest by=20 >orthostatic hypotension and a neurogenic bladder) and cognitive changes. >His cognitive problems have developed over the past two years or so. Kurt= =20 >is now on Closapine, a "heavy duty" neuroleptic drug. The drug has helped= =20 >greatly...but has many side effects to deal with such as lowering=20 >BP,terrific drowsiness,and severe constipation. The cognitive problems=20 >are drug related..years of sinemet and eldepryl! We continue to "hang in=20 >there" and are hoping and praying for a cure. We would love to hear from=20 >anyone who has had experience with these kinds of problems and learn how=20 >they are coping. > >It is wonderful to have a "simpatico" group of people to reach out to. > >Jeanne ([log in to unmask]) > >