Hi! my name is Jeanne Deuschle and I am writing for my husband Kurt, who=20
is 73yr. and has had PD for 12 yrs.. Although Kurt has many of the most=20
common PD symptoms, tremor etc. they are relatively mild when compared to=
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the significant problems he has with autonomic nervous system dysfunction=
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(manifest by orthostatic hypotension and a neurogenic bladder) and=20
cognitive changes (attributable primarily to years of sinemet and eldepryl)=
.
Kurt is on 650mg. daily of sinemet and has been off eldrpryl for the past=
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two years, He has been on a "heavy duty" neuroleptic(closapine) for the=20
past year. This drug has significantly helped the cognitive problems but=
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has its own side effects(great drowsiness,lowers BP ,severe=20
constipation). The drug also requires a weekly blood count.
We would love to hear from anyone who has experienced similar problems
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and learn how others have coped=20
. We are very optimistic and hope and pray for a "cure" before too long!
It is a good feeling to know that there are others who are simpatico to=20
our PD trials and tribulations
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Hi! My name is Jeanne Deuschle, and I am writing for my husband Kurt
who is 73yr. and has had Parkinson's for 12 yrs. He is on 650mg. of=20
Sinemet daily ..off deprenyl now. Although Kurt has some of the common
PD symptoms of tremor,etc. they are mild when compared to his more=20
difficult problems... autonomic nervous system dysfunction (manifest by=20
orthostatic hypotension and a neurogenic bladder) and cognitive changes.
His cognitive problems have developed over the past two years or so. Kurt=
=20
is now on Closapine, a "heavy duty" neuroleptic drug. The drug has helped=
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greatly...but has many side effects to deal with such as lowering=20
BP,terrific drowsiness,and severe constipation. The cognitive problems=20
are drug related..years of sinemet and eldepryl! We continue to "hang in=20
there" and are hoping and praying for a cure. We would love to hear from=20
anyone who has had experience with these kinds of problems and learn how=20
they are coping.
It is wonderful to have a "simpatico" group of people to reach out to.
Jeanne ([log in to unmask])
