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                                 RTK.NET Mail 141561   Apr 19 14:39:34 1996


A number of people have recently brought up an increasingly common objection
to the Udall bill:  an opposition to any disease-specific legislation.
Senator Robb and Congressman Steny Hoyer are the two in my area who make
this objection.  It's a particularly tricky question since the idea does
have some merit, after all, if there had been less disease-specific funding
at the direction of Congress, Parkinson's disease probably would have
received more funding in previous years when it was an even more invisible
disease.

These are the two main questions I ask, and I think we'd all welcome other
suggestions:

1)  If there is to be less (or no) disease-specific legislation or
appropriations, how are those of us in the Parkinson's community ever going
to change the funding inequities that now exist?  I often use Alzheimer's
disease as an example of an effort that had the kind of results we need
for Parkinson's disease.  Earmarked funding has nearly always been a part
of the kind of movement that produces real results.

2)  If you won't cosponsor the Udall bill at this time but are concerned
about Parkinson's research, what are you willing to do to demonstrate that
commitment and work for increased research funding through other means?  We
can at least make it a lot more work for a rep. not to cosponsor than to
cosponsor!

Sherri
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