Hi Again, Nancy,
I began an email answer and then decided that an answer to the list would
be better. Your questions are very important. Information about living
with Parkinsons and ways to continue an independant lifestyle is often
lacking and there is very little knowledge about sources of help. The
resources listed here
are a beginning.
Parkinsons is much the same wherever you live but the medical and help
systems can be quite different.
I hope you can find the information you need to be a good caregiver to
your husband.
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In the USA there are several Parkinson Organizations -- see list. Some
are mostly research; others are more patient centred. I can't check the
phone numbers as I live in Canada.
The American Parkinson's Disease Association
60 Bay Street
Staten Island, NY 10301
(800) 223-2732
United Parkinson Foundation
833 West Washington Boulevard
Chicago, IL 60607
(312) 733-1893
Parkinson's Disease Foundation
650 West 168th Street
New York, NY 10032-9982
(800) 457-6676
National Parkinson Foundation, Inc.
1501 N.W. Ninth Avenue
Miami, FL 33136
(800) 327-4545
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In Canada there is one national organization and some regional groups
The Parkinson Foundation of Canada has a toll free telephone number
<1-800-565-3000>
They will direct you to your closest support group and/or send booklets.
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The National Capital FreeNet is a Canadian community network with some
good basic data on parkinsons and a list of books with reviews.
(The Parkinson files are maintained by the Parkinson Society of
Ottawa-Carleton.)
Internet access to NCF is via
- Telnet: telnet.ncf.carleton.ca
- Gopher: gopher.ncf.carleton.ca
- WWW: http://www.ncf.carleton.ca/
You can login as a guest and access the parkinson files by typing
go parkinson at this prompt ====> go parkinson
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There are many other sources of Parkinson information in the USA and
Canada and some in the UK. what about other countries?
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Anne Rutherford <[log in to unmask]>
Newfoundland
