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Dear Joyce: We will pray for your speedy recovery. Henry Guttentag You wrote: > >Thanks you all so much for your messages of good wishes. Your prayers >carried me through my (left side) Pallidotomy last week in Toronto. > >The op was on Monday, we returned back to NJ on Friday. > >As I go through the healing process and begin to regain my composure, I will >document the process in greater detail but for the moment my first >observations are: > >Operation day Monday >Day 2: Tuesday: overall conditions not to bad >Day 3 and 4 Wednesday and Thursday: conditions bad could not walk had >to use the wheelchair VERY DISCOURAGED >Day 5 Friday conditions in the A>M> started off in frozen condition and had >to wheelchair for Dr. Lozano evaluation visit. But immediately afterwards I >was able to manage comfortably for the three hour bus trip from Toronto to >Buffalo where we picked up rental car for drive back to NJ. I was in good >walking condition so we made a 2 1/2 hours drive stopped for the night at >7:30 >Day 6 Saturday For the first time in years I was comfortable in the car so >we started our drive at 10AM stopped twice and arrived in NJ at 5:PM >Day 7 Sunday Had a great day (no pains no freezing and good gait) with >many friends visiting but broke down at about 9PM with bad pain and tremor >on my left side. >VERY DISCOURAGED > >However, >a) NO CRAMPING in EITHER leg, feet or toes >b) some early day and more severe late night pain in my LEFT leg (thigh and >calf) >c) some tremor along with (b) on left side >d) some freezing on both sides during early morning and late night >e) occassional slurred speech and misspoken words > >During the final evaluation consult with the surgeon, his explanation for the >continued stiffness and freezing was due to "too little" Sinemet. So, we >added one more 25/100 to the OJ mix. > >After 12 years of this, Im unable to fathom the daily inconsistencies of the >same dosages of the same meds. Its almost like an Edie Gormy song: > Did I take too much > Did I take too few > Did I eat too soon or eat too late or eat too much > > Was it wrong to hope for miracles > Was it wrong to want no pain > Should I let a man I hardly knew dig deeply in my brain > In my heart it was the right thing to do > So I'll wait to heal and dream of things I have to gain > >to be continued > >Joyce >