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Let me introduce myself and say "Hello" to all of you good folks on the
parkinsn list.  I first came to the list on April 17th.  I've been so busy
taking off the daily digests and converting them from Teach-Text to Claris
Works [so that I can open a file and read it] - so busy that I have only
skimmed some of the digests.  But I do have copies of all files going back to
February.  Stan Schenkerman was good enough to give me copies of the first
month or two.

I have been somewhat surprised at the number of hospitals these days that
offer the pallidotomy procedure.  I consider myself very fortunate in that I
got into the program at Emory early on.  I had my first pallidotomy on the
right brain in July 1994, and a second one on the left brain in August 1995.
The results have been 'spectacular'!  My wild, disabling dyskinesias are past
history [so far!], and I no longer freeze for hours at a time.  I thank my
lucky stars, and count my blessings, every day...   I must add I got some
negatives after the second pallidotomy - my speech and my handwriting are a
little worse that before, and I seem to have  muscle problems - my body is
all distorted.  But I'll trade those problems for the dyskinesias on my right
side that are gone now, any time!

As to medication, I am on plain levodopa and permax - 3,050 mg of levodopa
daily - a 700 mg dose at 8 am, then 3 doses of 750 mg 4 hours apart.  I
finish the day with 100 mg at bedtime.  My permax is 4 doses of 1.125 mg for
a daily total of 4.5 mg.  During the past 25 years I have run the gamut of
treatment for Parkinsons, even had a tube in my gut for 2 years pumping in
liquid Sinemet.  I tried Sinemet, Sinemet CR, and plain levodopa.   But
nothing prevented wild dyskinesias, and freezing for hours on end.  Then came
the pallidotomies and blessed relief!

And, that's my story.  I do hope that I can contribute to the list in some
way in the future.
Mort [log in to unmask],Internet

P.S. I haven't received any lists for June or the last week in May.  I was in
the hospital with another heart attack, and angioplasty during this time.
And my modem was down a couple of days after I got home, so I didn't collect
my mail for about a week.  Is this the reason.  I just looked - the last
issue I got was 5/27 to 5/28
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