Good day,
The folowing information is all related to OPCA. Hang in there. I
hope it helps.
Jeff Jones part-time CG for Becky, 50/15, Seattle, WA
[log in to unmask]
http://medhlp.netusa.net/agsg/agsg23.txt
National Ataxia Foundation (NAF)
Ataxias
Hereditary Ataxias
Friedreich's Ataxia
Olivoponto Cerebellar Atrophy (OPCA)
Ataxia Telangiectasia
Address: 15500 Wayzata Boulevard #750; Wayzata, MN 55391
Contact person: Donna Gruetzmacher, Executive Director
Phone: 612-473-7666
Fax number: 612-473-9289
Founded: 1957
Number of chapters: 42
Membership: 7,500
This organization provides
Information for: affected individuals
families of affected individuals
the public or media
professionals (e.g., clinicians, teachers)
Support and referral: peer support
professional counseling
matching individuals/families
medical referrals
referrals to local chapter or group
Technical assistance: forming a group or chapter
fundraising
Speakers and consultants: speakers
consultants
Financial assistance: annual meeting travel (limited grants)
Support for research: research grants
linking researchers and families
Conferences and symposia:
members
professionals
researchers
Educational materials: fact sheet(s)
pamphlet(s)
booklet(s)
newletter
video(s)/movie(s)
