Following is Senator Baucus' response to my E-mailed request for his
cosignature on the "Udall Bill". The sense of urgency for passage of the bill
stimulates my appreciation for the prompt and sensitive response I received
from Senator Baucus'. Our representatives for the Parkinsons Community will
visit with him soon. I hope the meeting goes well.
Maryhelen
---------- ---------- ---------- -------- ------- ------
------
Subject: Re: Please cosign the "Udall Bill"
Date: 96-06-13 15:31:10 EDT
From: [log in to unmask]
To: [log in to unmask]
Thanks for following up, Maryhelen. My Legislative Assistant for
health issues will be meeting with some advocates of Parkinson's
research next week, so she can advise me of the situation. If I have
any more questions at that point, I may contact you.
As a rule of thumb, I only cosponsor bills that are referred to
Committees of which I am a member, or those which have been reported
out of Committee and await action by the Senate. This is a cautious
practice, because bills are often changed dramatically during
Committee consideration -- I don't want to buy a pig in a poke. The
Udall bill has been referred to the Labor and Human Resources
Committee, of which I am not a member. I look forward to seeing how
it emerges from Committee, or whether it gets picked up in whole or in
part during the budget process this year.
Until then, please know that I understand how important this is to you
and the families of other Parkinson's sufferers. I recall very well
Mo Udall's struggle with Parkinson's, and I am still touched by his
invicible good humor in the face of it. As I wrote to Margaret, I was
raised to believe we have a humane obligation to alleviate suffering.
I support vigorous health research, in the private sector as well as
with federal participation. I understand you feel we need to make
Parkinson's and neurological disorders a higher priority.
______________________________ Reply Separator
_________________________________
Subject: Please cosign the "Udall Bill"
Author: [log in to unmask] at Internet
Date: 6/12/96 1:13 PM
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Date: Wed, 12 Jun 1996 13:12:30 -0400
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Subject: Please cosign the "Udall Bill"
Dae: June 12, 1996
To: Senator Max Baucus
From: Maryhelen Davila
Volunteer Parkinsons Community
Phoenix Arizona
E-Mail address [log in to unmask]
Purpose: Request for Senator Baucus ' cosignature on the "Morris K. Udall
Parkinsons Research and Education Act S684 ("Udall Bill").
Timing/Prioriiy: This is time sensitive. Your rresponse is considered very
important to our nation's Parkinsons Communitiy
. .
Background:
My friend Margaret Tuchman, one of our country's Parkinson's Connunity has
shared your letter with us. Your E-mail letter responded to her request for
your support on the above captioned bill.
Discussion:
One and one-half milllion Americans are affected by Parkinsons Disease. We
appreciate the support you express in your response to Margaret. Please make
your support helpful to us by agreeing to co-sign the "Udall Bill".
In your June 11, 1996 letter to Margaret, you wrote:
"Thanks for your note, Margaret. I have always supported a vigorous
federal health research program, and I also want to be sure we offer the
right incentives to the private sector to conduct health research. This is
much more than just an investment in productivity
-- it is our humane obligation to alleviate suffering. I'll keep in
mind your support for the Udall bill."
Senator Baucus, because your lletter is so ecouraging, I will forward a copy
of this note to Margaret, to our friends in Arizona, and to the members of
this worldwide computor list. Your decision to cosign the "Udall Bill" is of
great importance to all of us in this country and to those worldwide - so
many whose lives, like mine, are being crushed by this relentless sufferring
of Parkinsons and Related Neurological Disorders.
We wish no one had to suffer any catastrophic disease such as Parkinsons or
Cancer. We appreciate your understanding of how so many victims hope hangs on
federal research funding. Can you feel as our familiies do as they helplessly
watch our struggle and see the disparate treatment we are subjected to when
we compare the impact of Parkinsons Disease and it's hstory of federal
funding to the federal support given to other diseases? Parkinsons Research
gets $26 per patiient per year. That barely covers one day of some of our
medications.
We are happy to aswer every question you may have, because we are confident
you will support the bill if you are fully informed of the very beneficial
impact your decision can have on so many.
Respectfully,
Maryhelen
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Subject: Re: Please cosign the "Udall Bill"
