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Hello all, I've also had a message returned, apparently from a German location. Did the following post make it to the list? Can anyone less "technically challenged" than I explain what is going on? Curiously, Gaylon ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Post Master wrote: > > Ihre Nachricht an: [log in to unmask] > mit der Message-Id <[log in to unmask]> > und dem Betreff "Re: amitriptyline hcl (Elavil, Endep)" ist unzustellbar. > User ist in der Box unbekannt! > ------------------------------------------------------------------------------- > > Hi Linda & all, > > Thought I would relate my experience re: PD and fibromyagia, for what it > might be worth. > > Linda S. Breedlove wrote: > > > A couple of months ago Ed's doctor prescribed amitriptyline for him, as > > he does not have tremors but has *much* pain, especially in the mornings, > > along with stiffness. (He had already been on Sinimet, permax and > > eldepryl for three years). > > I DO have tremor, primarily in my left hand, which has been managed pretty > well with Sinemet and Sinemet CR. In recent months my right hand, foot and > head have become more involved, especially when stressed or very tired. A > different neuro has been trying to help me with the progression. He gave me > Permax first. It put me "in a fog" somewhere between reality and the twilight > zone. It did help the tremor. Two weeks ago the neuro stopped the Permax and > put me on Parlodel, 1/2 tab twice a day. It has helped the tremor, somewhat, > without the other problems. > > Prior to my diagnosis of PD, 18 years ago, I had been told by doctors that I > had arthritis. *Much* pain and stiffnes has been part of my experience also. > I was told that pain wasn't a PD symptom and that it was probably arthritis > related. Taking four aspirin up to four times a day for the pain was the Rx. > > About six or seven years ago I began having burning sensation and pain in my > biceps. I heard a report about fibromyalgia that sounded a lot like what I > was experiencing. I told my neuro at the time about it and he put me on > Fenoprofen (sp?) which helped the burning feeling. The general muscle pain > continued to be a problem. > > > He hasn't taken any yet, as he's somewhat reluctant to, so I don't know > > if they'll work...but here's my question: I've been reading some about > > the disorder Fibromyalgia (or fibrositis, its new 90's name) and > > discovered this amitriptyline is the drug given for that disorder, as it > > promotes "deep" muscle-restorative sleep. It's about the only effective > > drug for fibromyalgia patients. > > About a year ago I got to the point that I wanted to try and find out whether > or not I had fibromyalgia. I thought I probably did based on my own research. > I went to see a rheumatologist for help. After several visits and > examinations he concluded that I didn't fit the complete profile of symptoms > (tender to painful at _?_ number of joint touch points etc.) to have > fibromyalgia. He tried a couple of meds, but I ended up taking 2 Daypro > daily. This helps some, but I still have general soft tissue pain in most of > my body. My family doctor tells me to take Tylenol for the pain. It does > little or no good. Anacin seems to help most, but because the Daypro is an > anti-inflammatory the doctor doesn't want me to take it. > > I don't recall amitriptyline being mentioned by any of my doctors. Is that > the name it is dispensed under or are there other name(s) for the drug? > > > Has anyone on this list had any experience with getting incorrectly > > diagnosed with Parkinson's Disease, when, in fact, they had > > fibromyalgia? Or vice versa? > > I said all of that to basically say, I still don't know for sure. With moving > from Ohio to Florida, changing insurance providers etc. I've seen several > neurologists over the years. All of the them have agreed with the PD > diagnosis, a couple of them, however, somewhat questioningly. And me, I've > accepted the PD diagnosis, also somewhat questioningly, and, by God's grace, > try to deal with the aching etc. one day at a time. It gets worse this time > of year, here in Florida, where we have almost daily afternoon thunderstorms. > My body tells me the storm is approaching long before it gets to us. It's > often more accurate than the weatherman. > > > Ed's symptoms sure fit the fibromyalgia syndrome more than PD. > > If anyone knows about *both* these disorders, please let me know what you > > know. Thanks. > > That's about all I "know", and I'm not sure about that......but then neither > are the doctors I've seen. > > I wish you and Ed the best. If you, or anyone reading this, know or learn > anything more definitive, I would sure like to hear about it. > > SOON! > Gaylon Johnson > <[log in to unmask]> > > -- > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > * On the Suncoast of Florida * > ~~~~~~~~~~~~~~~~~~~~~~~~~~ > "When the outlook is dark, try the UPlook!" > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > ------------------------------------------------------------------------------- > > - ihr Prometheus-Mailbox-System