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No - I do not get burning feet symptoms.  That does not ring a bell with me
at all.  People with RLS have awful feelings in their legs like bugs crawling
under the skin - twitching of legs  when trying to relax - pains in muscles
of legs - the absolute necessity of having to move or walk in order to get
relief.  It is impossible to rest or sleep when these sensations occur.  RLS
probably is genetic as most of the sufferers I am in contact with have
several close relatives with it.  It often starts in childhood and called
"growing Pains" or "the heebie-jeebies."

RLS is hard to treat and at present everything goes.  Some patients are tried
on Sinemet and this helps a lot - for awhile - but Sinemet has a rebound
reaction and soon RLS symptoms occur in the morning and often every time
Sinemet drug level starts to go down.  Some sleep specialist/neurologists are
trying Permax (pergolide) alone on patients with just RLS.   So far that
seems o.k., but patients with PD/RLS need Sinemet (levadopa/carbidopa) and
the addition of Permax might allow a lower dose of Sinemet which might ease
the tendency to rebound.

Most people with RLS do not have Parkinson's Disease.  There is a guess that
ll million people in the USA suffer from various degrees of RLS.  We think
there are l million PD sufferers.  I know of only four people with  PD and
RLS together.

All kinds of drugs are being tried for relief.  Antiepileptic drugs.  Muscle
relaxants.  Tranquilizers.  Antidepressants.  Opiates (especially codeine).
 Other nostrums have been tried with little if any relief (accupuncture -
quinine - massage - cold water baths - hot tubs - lots of exercise - no
exercise - diets - vitamins - herbs)  It is a very frustrating disease and
difficult if not impossible to treat.  We try everything for relief.
 Methadone is suggested by one.  Another swears by marijuana.  I have heard
that suicide is high in RLS sufferers.  One man wondered what would happen if
he was in a body cast and couldn't move around when RLS struck (usually in
the evening).  Another patients jokingly (I think) said he would like to get
his legs cut off.  RLS is a big cause of insomnia.

My feelings are that countless alcoholics and street people suffer from
severe RLS and could not sleep, hold a job or enjoy a movie or take a plane
trip.  Being drunk all the time is the only way they can stand the *pain* of
RLS.

Those of us who are looking for long term relief are trying combinations of
treatments.  Since I have PD as well my PD/RLS routine is more or less as
follows:

Sinemet CR 25/100 at 6 a.m. - l0 a.m. - 2 p.m. - 6 p.m. - l0 p.m.
Sinemet 1/2 regular once during the night when I wake up.
Permax 0.05 mg at 6 p.m. - l0 p.m. - and usually at 3 a.m.
BusPar 5 mg three times a day.
Oxycodone 5 mg usually at bedtime.

I have tried each drug alone with the Sinemet.  The results were not good.
 Sinemet worked well alone at a total of 800-900 mg a day for about a week
and then rebound set in and all hell broke loose and the twitching horrors
started. Lowering the Sinemet dose didn't take care of RLS. The best result
is a drug combo.  I don't drink alcohol and I'd like to try marijuana (in a
brownie as I don't smoke either - but I could learn pretty fast if it
worked).

Again, I don't believe your dad has RLS.  I do think he should be tested for
diabetes however. Good luck with your big task.  PD is no fun even by itself.

Barbara Yacos, RN
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