Automatic digest processor wrote: > > There are 19 messages totalling 651 lines in this issue. > > Topics of the day: > > 1. D.C. Gene Fair 5K on September 22 > 2. Nancy's Journal > 3. Falling too often. (2) > 4. Body count funding- - Long post > 5. Udall Bill and NIH Reauthorizationn (2) > 6. Pressure down the stretch > 7. 50 for Udall Bill > 8. Suitable Computer Keyboard > 9. New Member (2) > 10. Communication aid > 11. Re[2]: I'm new, also > 12. Call Kassebaum now > 13. Call from anywhere in the world. > 14. Encephalitic Parkinsons > 15. CONSTIPATION X PARKINSON (fwd) > 16. HALLUCINATION X PARKINSON fwd) > > ---------------------------------------------------------------------- > > Date: Tue, 16 Jul 1996 00:00:19 -0400 > From: Sherri Cave <[log in to unmask]> > Subject: D.C. Gene Fair 5K on September 22 > > RTK.NET Mail 173051 Jul 16 00:00:14 1996 > > The Washington, D.C. chapter of the National Parkinson's Foundation will > hold its first annual Gene Fair 5K in West Potomac Park on September 22 > at 8:00 a.m. We have a goal of 2,000 runners and walkers and need lots of > help to make that happen. If anyone you know might wish to > volunteer or participate, please let them know about this exciting > research fundraiser. This course is level and wheelchair accessible, > and it travels around the tidal basin passing the Jefferson Memorial. > To receive more information, contact Brian Morabito, > Executive Director of the Capital Chapter of the National Parkinson's > Foundation, at (202) 466-0550 or [log in to unmask] > > We need about 120 volunteers on race day from 6-7 a.m. thru 9-10 a.m., and > we need volunteers to person our packet pick-up tables from 11-4 on Friday > and 12-5 on Saturday before the race at Pentagon City Mall. To volunteer > to help on any of these days, contact Sherri Cave at (301) 559-7626 or > [log in to unmask] > > The Gene Fair 5K Run/Jog/Walk Events for Parkinson's disease are dedicated > to increasing awareness of Parkinson's and raising needed funds for research. > Gene Fair is a 39-year-old Parkinson's patient who has dedicated his life > to increasing awareness of this debilitating disease. Fair, who has great > difficulty walking due to the severe shaking associated with Parkinson's, > is an accomplished long-distance runner. Running helps Gene Fair focus his > energies and maintain a positive outlook. He always looks forward to > meeting his 5-year-old daughter Rachel at the finish line and educating > more people about PD. Fair is literally running for his life and for the > lives of other PD patients. Patients around the world share Gene's dream > of finding the cause and a cure for Parkinson's disease. Help bring that > dream closer to reality by participating in this important event. > > Having 2,000 people at a Parkinson's run in D.C. on September 22 will make > an important statement in this year of heightened political activity and > awareness, and it's sure to be a lot of fun. Combine it with some > sightseeing plans and visits to your Senators or Congressperson's D.C. office > on Monday or Friday, and you've got a great weekend trip planned! > > Do what you can, and help spread the word, > > Sherri Cave > [log in to unmask] > > ------------------------------ > > Date: Mon, 15 Jul 1996 23:12:31 -0400 > From: [log in to unmask] > Subject: Re: Nancy's Journal > > Nancy, > Thank you for sharing your deepest, most personal thoughts. It must > have taken alot of courage. You are in my thoughts and prayers. God works > in mysterious ways. You will find answers and relief. Don't give up! > > Pam Dalby ([log in to unmask]) daughter of Ardith 74/9+ > > ------------------------------ > > Date: Tue, 16 Jul 1996 00:59:07 -0400 > From: Phillip Dunn <[log in to unmask]> > Subject: Falling too often. > > I am beginning to fall over far too often and am anxious to avoid hurting > myself seriously. > It seems that I get onto my toes when turning, or starting off, or > hesitating,then I begin to stutter with my feet and loose my balance and > fall.All this happens very quickly and as I do tend to do things quite fast > my feet suddenly don't move.I think this is linked with my medication as I > also notice that when I feel unsteady my medication has not worked fully. > I have the same kind of problem when going down slopes and this is becoming > a sort of Psychological problem as I hesitate and stutter with my feet. > Does anyone have any ideas as to how I may overcome this problem? > > Syd Adams. 106072,[log in to unmask] > > __________________________________________________________ > Firstname Lastname Philip Dunn NORTON PC ANYWHERE FOR DIRECT CONTACT. > EMAIL THE TIME TO CONNECT. [log in to unmask] > Telephone number and any other information you wish to add > --- > > ------------------------------ > > Date: Mon, 15 Jul 1996 20:35:06 -0400 > From: Margaret Tuchman <[log in to unmask]> > Subject: Body count funding- - Long post > > Thought you might want to read this. > > http://www.sciencedaily.com/1996/July/01/story4.htm > > The Journal of NIH Research > 06/01/96 > Body-Count Budgeting: New Pressure To Shift Funding Among Diseases > Bruce Agnew > > "During all the 15 years that I have served on this subcommittee," said > Rep. John Porter, R-Ill., chairman of the House Appropriations Subcommittee > on Labor, Health and Human Services (HHS), and Education, early in this > spring's hearings on NIH's budget, "I always thought it was understood that > there would be nothing, ever, more destructive than to set disease against > disease by adjusting [funds] between institutes, taking from one and giving > to another." > > But this year, Porter warned, "I know I'm going to have a hard job > convincing a number of people on our side that that's the case." > > Whether Porter likes it or not (he doesn't--and neither does NIH Director > Harold Varmus), some fellow Republican members on his subcommittee are once > again promoting the idea that NIH funding is not being divided fairly among > diseases. They may try to force a shift in NIH spending priorities later in > June, when the panel begins drafting NIH's funding bill for fiscal year > (FY) 1997, which starts Oct. 1. > > The primary target for congressional critics of the way NIH divides the > research-funding pie is the $1.4 billion allocated for AIDS research in the > administration's proposed $12.4 billion NIH budget for FY 1997 (see April > issue, page 23). > > During the House Labor-HHS-Education subcommittee's NIH hearings April > 18-25, Rep. Jay Dickey, R-Ariz., asked HHS Secretary Donna Shalala for a > comparison of the percentage of AIDS-research proposals and the percentage > of cancer-research proposals that win funding. (Shalala promised to provide > the answer for the record--a fairly common response to that sort of > question at appropriations hearings--but had not done so by the time The > Journal of NIH Research went to press.) Rep. Henry Bonilla, R-Tex., asked > Varmus to provide for the record a breakdown of how much research HHS > funded per death from cancer, diabetes, heart disease, human > immunodeficiency virus-type 1 (HIV-1)/AIDS, and stroke in FY 1995, the most > recent complete year. And Rep. Ernest Istook, R-Okla., a second-term > conservative who has a knack for asking NIH officials nettlesome questions, > came to the hearings armed with a chart showing dramatic disparities > between HIV/AIDS and other diseases in research dollars spent per death and > in relation to medical costs. > > Istook's chart--prepared by James Crapo, a professor of medicine and > pathology at Duke University in Durham, N.C., and brother of Rep. Michael > Crapo, R-Idaho--indicated that in 1991, HIV/AIDS was the ninth leading > cause of death in the United States. In that year, AIDS accounted for 11.7 > deaths per 100,000 population--far below the 285.9 deaths per 100,000 due > to heart disease, 204.1 deaths per 100,000 due to cancer, and 56.9 deaths > per 100,000 due to stroke. But NIH research funding for those diseases > worked out to $110.81 per AIDS death, compared with $2.77 per death for > heart disease, $10.39 per death for cancer, and $1.85 per death for stroke. > NIH research funding in relation to the cost of medical care for each > disease showed a similar pattern. > > "HIV/AIDS [funding] is runaway," Istook said--although he emphasized that > he is concerned about AIDS funding "not because it's not a terrible > disease, but [because] it's one of many terrible diseases." > > Ironically, an NIH report was the source of the numbers Istook was citing. > Responding reluctantly to a 1994 order from the Senate Appropriations > Committee, NIH on Feb. 28 sent Congress a hefty statistical compilation of > death rates, direct costs, and indirect economic costs of 66 major diseases > and conditions, together with a breakdown of NIH research funding on each. > But accompanying the figures was a 28-page report cautioning repeatedly > that the data--largely a conglomeration of previously published material > rather than the result of a new study--are incomplete, imprecise, > inconsistent, variable, speculative, occasionally contradictory, sometimes > overlapping, and potentially misleading. Not surprisingly, the report > cautioned that the cost-of-illness analyses "do not provide a simple > formula for the allocation of research resources." > > Since March, the document and its 28 pages of caveats have been circulating > among the research-advocacy groups in Washington, with surprisingly little > effect. "I am surprised that I haven't heard more discussion about it, but > that may be due in part to the way it's slowly permeating through the > community," says David Moore, associate vice president for governmental > relations of the Association of American Medical Colleges in Washington, > D.C. "Whether people haven't gotten the report yet, or whether they haven't > read the report yet, or whether they don't want to make those sorts of > [disease-vs.-disease] comparisons, I can't tell." > > Varmus and Porter clearly hope that the silence means that the > cost-of-illness report is being discounted as not particularly useful. > > "As many of my colleagues, especially Dr. Lenfant [National Heart, Lung, > and Blood Institute Director Claude Lenfant] have pointed out to me, > budgeting by body count is not the right way to go," Varmus told Porter's > subcommittee on April 18. Other factors that must be considered in > allocating funds, he said, include scientific opportunities, the variety of > grant applications NIH receives in various categories, and the need for > research into rare diseases (a favorite congressional subject). "Many of > the most important discoveries that we have made have come from the pursuit > of rare diseases," he said. > > Under persistent questioning by Istook, Varmus insisted that AIDS research > deserves special emphasis now because "it's an infectious disease, it's a > new disease, it's continuing to spread" into U.S. subpopulations "and it's > spreading like wildfire internationally." And even if NIH did not have to > comply with existing congressional directives, Varmus said, "I don't > believe that there would be a major change in the [research-funding] > pattern. There would probably be small changes, but not major changes." > > Will that satisfy Istook and his fellow skeptics? It may have to, at least > for the moment, because the mood in Congress this year is running strongly > against meddling with NIH decision-making. "The sentiment has been as > anti-earmark as it has been for some time," notes Michael Stephens of Van > Scoyoc Associates in Washington, D.C., a former staff director of the House > Labor-HHS-Education Appropriations Subcommittee who is now a consultant to > FASEB (the Federation of American Societies for Experimental Biology in > Washington, D.C.). > > Istook last month was still keeping open the option of offering an > amendment to the NIH funding bill to reduce the AIDS-research allocation. > An Istook aide says that, like Porter, Istook believes that "it ought to be > science that decides where this money goes." But he adds, "there ought to > be some kind of weighing factor we can put in place" to achieve "some > correlation" between research funding and a disease's impact. > > In fact, simply making the argument may serve that purpose. "You have to > understand this in its context," Porter said in an interview on May 8. > "Congress does a lot of message-sending, and the patient-advocacy groups > send messages, and the research community sends messages as well. Industry > sends its messages. In the end, those messages have to be synthesized and > evaluated by NIH itself--by science, and not by Congress." At the same > time, Porter says, NIH officials "have got to evaluate all of our feelings > and priorities, and I think they do." At the very least, Istook and his > allies are sending a message. > > --BRUCE AGNEW > > --------------------------------------------------------------------------- > Margaret Tuchman > [log in to unmask] > > ------------------------------ > > Date: Tue, 16 Jul 1996 04:31:13 -0400 > From: [log in to unmask] > Subject: Re: Udall Bill and NIH Reauthorizationn > > Goodshot, Linda ! > Getting back! > Mary > > ------------------------------ > > Date: Tue, 16 Jul 1996 05:02:36 -0400 > From: [log in to unmask] > Subject: Re: Pressure down the stretch > > Jim Cordy > I'm almost back n the saddle. > (2majorsurgeries)Tony Fazio is working long and enthusiastically > here in Ny. I'm trying to help by printing your posts: Effective advocacy > )1-2), Momentum, etc. and sending to non-ONLINE members. > MEHMOIRS > > ------------------------------ > > Date: Tue, 16 Jul 1996 02:34:08 -0400 > From: [log in to unmask] > Subject: Re: Udall Bill and NIH Reauthorizationn > > It is the current thinking of our leadership that the NIH > reauthorization is currently the best vehicle to move forward the > Udall Bill. If that is not successful or a better vehicle presents > itself I am assured that we will take advantage of it. > > With respect to discussion with other prospective cosponsors, I > suggest you simply put forum our desire to increase Parkinson's > research funding via whatever vehicle presents itself. > > Thanks again for the timely information. > > ------------------------------ > > Date: Tue, 16 Jul 1996 02:34:08 -0400 > From: [log in to unmask] > Subject: 50 for Udall Bill > > We officially now have 50 Senators sign on as cosponsors. Senator Mack of Florida just signed on. Counting Senator Hatfield, the original sponsor, means we > > First let me personally thank all of you on this list who have helped. I > cannot imagine having done this without the assistance of this > electronic communications vehicle. > > Second, let me tell you that you may savor this accomplishment for about the 30 seconds it takes read this message. Then I implore you to pick up the phone > > Tomorrow they vote on rather they should attach the Udall Bill to the > NIH reauthorization. If they choose not to it will be a major blow > to our efforts to increase funding for Parkinson's research. > > Rumor has it that Republican support on this committee may be softening because of Kassebaum's stated opposition to earmarking (setting aside specific funds fo > > disease specific items in the last NIH reauthorization. I suggest you ask this question: How can you not provide the funding for Parkinson's Disease when so m > > They can be contacted via the toll free capital switchboard > (800-962-3524) or e-mailed at the listed address. > > WASHINGTON > * Sen. Gorton, Slade (R) > [log in to unmask] > VERMONT > * Sen. Jeffords, James M. (R) > [log in to unmask] > TENNESSEE > * Sen. Frist, William H. (R) > [log in to unmask] > INDIANA > * Sen. Coats, Dan (R) > KANSAS > Sen. Kassebaum, Nancy Landon (R) > CHAIRMAN, HUMAN RESOURCES COMMITTEE > OHIO > * Sen. DeWine, Mike (R) > [log in to unmask] > NORTH CAROLINA > Sen. Faircloth, Lauch (R) > [log in to unmask] > MISSOURI > Sen. Ashcroft, John (R) > NEW HAMPSHIRE > Sen. Gregg, Judd (R) > > * indicates cosponsors > > ------------------------------ > > Date: Tue, 16 Jul 1996 09:53:57 -0400 > From: "N.P.F. Mailbox" <[log in to unmask]> > Subject: Suitable Computer Keyboard > > In reference to the question re: a keyboard for those with PD, Windows95 > Accesability Options allow > the user to control the response from the keyboard. One example, is the > ability to have the keyboard produce > only one character regardless of how long the key is pressed. > > Hope this helps, > > Michael A. Alicea > [log in to unmask] > www.parkinson.org > National Parkinson Foundation, Inc. > 1501 Northwest 9th Avenue > Miami, Florida 33136 > 305.547.6666 - 1.800.327.4545 > [log in to unmask] > http://www.parkinson.org/ > > ------------------------------ > > Date: Tue, 16 Jul 1996 10:03:35 -0400 > From: WENDY HENRY <[log in to unmask]> > Subject: Re: New Member > > Thanks for the reply, I'm going to double-check on those meds, and I'll post > another message as soon as I have it straight. I know that she was on Sinemet, > but I'm not sure if she still is...they were changing them so much for a while > that I lost track. I know that it's inexcusable for me to be so lax about > knowing what my mother is taking...she's been being taken care of in the > personal care home, and even though I keep track of all her visits to the Dr., > and know that her meds have not been changed for at least 2 years, I'm > uncertain what all she is taking. I WILL change that. Thanks again. > > Wendy > > ------------------------------ > > Date: Tue, 16 Jul 1996 13:19:30 -0400 > From: Camilla Flintermann <[log in to unmask]> > Subject: Communication aid > > Friends--for someone in our group, I've been asked to inquire if any of > you with voice problems have used the "CRESTALK" , a portable communication > aid with a display for typed messages, a 20K memory for preprogramming > sentences,and no voice amplification, just the printed "speech". He is > considering buying one. Any experience with this or a similar device would > be appreciated. > Camilla Flintermann,CG for Peter,78/7,Oxford,OH > [log in to unmask] > > ------------------------------ > > Date: Tue, 16 Jul 1996 13:27:08 -0400 > From: WENDY HENRY <[log in to unmask]> > Subject: Re: New Member > > OK--I finally checked it out, and it is the Amantadine that my mom is taking, > the generic form of Symmetrel. She is taking a 10CC dose of that daily, and > it's 50 mg. She is also taking 5 mg. of the Eldopryl once a day. That's it. > No Sinemet. I'm going to call her Dr. to find out why. Thanks again! > > Wendy > > ------------------------------ > > Date: Tue, 16 Jul 1996 15:52:14 -0400 > From: Linda Cooperstock <[log in to unmask]> > Subject: Re[2]: I'm new, also > > We at least convinced Mom to have Dad visit at the local Easter Seals > Day Care Center. He goes for 4 hours a day twice a week. This is a > great help to mom, but rather than catch up on much needed sleep, she > does all the running around for the week. > > I regret that they do not see a neurologist. Do you think at this > late stage in his disease a different physician might do any good? > Dad walks only with assistance. He sleeps a great part of the day in > his chair, but is up all night with restlessness and the urge to use > the bathroom. This keeps mom up all night,, also. > > He does eat very well. I think that is a point in his favor. The > part that saddens me is that he was the strongest, most active person > I knew. He never smoked, drank, or overindulged in anything . He > walked to work (steel mill) every day for 35 years. and on and on. My > only consolation is that he is probably handling all of his falls > (including down the full flight of basement steps recently) with no > fractures, and has otherwise not shown signs of other diseases. > > But he is weak. > > thanks for listening. > -Linda, Red's daughter > > ______________________________ Reply Separator _________________________________ > Subject: Re: I'm new, also > Author: "PARKINSN: Parkinson's Disease - Information Exchange Network" > <PARKINSN@ listserv.utoronto.ca> at MU-Internet > Date: 7/15/96 8:45 PM > > Linda: is there a dear friend, a church pastor, etc to whom your Mom > would listen? Glordon's Mom always quoted her bridge groups(3 of them), but > they took care of each other, too. They stepped in and called a son in > Southern California as they were concerned about his mother. I recall > that--the poor worman was very ill, it turned out, but before she would > listen to us, it was them. Just an angle to consider. If she wears out, then > who will take care of your Dad?? Good Luck, vbelieve me--Gordon's wife. > > ------------------------------ > > Date: Tue, 16 Jul 1996 16:56:19 -0400 > From: [log in to unmask] > Subject: Call Kassebaum now > > I just called Senaytor Kassebaums office and they said they are taking names > of everyone who calls about the Udall Bill S.684. > Please call right now and leave a message for The senator. > > Call now. There is no time to wait. Ask every one in your home to call > right now. Ask for Senator Kassebaums office. 800-962-3524 > > Say," Please ask her to provide funding for Parkinson's disease when the > Udall bill S. 684 comes up for a vote tomorrow." > > ------------------------------ > > Date: Tue, 16 Jul 1996 17:08:41 -0400 > From: [log in to unmask] > Subject: Call from anywhere in the world. > > Call Sen Kassebaum 202-224-4774 > > Sen. John Ashcroft 202-224-6154 > > Sen. Judd Gregg 202-224-3324 > EVEN IF YOU ARE FROM OUT OF THE COUNTRY. If you do not live in the United > States you can still do something to help yourself and us to get the Udall > bill through. You can call the above offices with the direct phone numbers > listed above and leave a message. > > Say, " Please support funding for Parkinson's research tomorrow when the > Udall bill S.684 is voted on. The rest of the world is watching." > > ------------------------------ > > Date: Tue, 16 Jul 1996 17:13:10 -0400 > From: will johnston <[log in to unmask]> > Subject: Re: Encephalitic Parkinsons > > --=====================_837562155==_ > Content-Type: text/plain; charset="us-ascii" > > At 05:34 PM 7/15/96 -0400, you wrote: > >Hi everyone, > >I am a new subscriber, and am here on behalf of my wife, now 61, and > >diagnosed about a year ago. She has no tremors but is fast losing fine > >motor control..ability to balance, and therefore walk, and speech is > >becoming mechanical. At times not understandable. > > > >All this resulted, say the neurologists, from contracting ENCEPHALITIS > >when young, leaving the brain scarred. > > > >We would like to contact anyone relating to this "encephalitic" Parkinsons. > > > >Graham Lacey. > >[log in to unmask] > > > Dear Graham, > That is a very unusual diagnosis for 1995. She must have been born about 1935. > There have been almost no cobfirmed cases of post-encephaletic PD where the > encephalitis was contracted after the early 1920's. > > A friend [an MD - a psychiatrist rather than a neurologist] had a mother- > in-law with post encephaletic PD. Her husband was a veterans' hospital MD > and won a $250 prize in 1928 for his essay on the ENCEPHALITIS EPIDEMIC which > was history then. [$250 would about buy a new Ford in '28] > > I would suggest gettng a second opinion from another neurologist, preferably > one with a movement disorder specialty. > > Will Johnston in Salisbury, MD > > --=====================_837562155==_ > Content-Type: text/plain; charset="us-ascii" > > To: "PARKINSN: Parkinson's Disease - Information Exchange Network" <[log in to unmask]> > From: will johnston <[log in to unmask]> > Subject: Re: Encephalitic Parkinsons > Cc: > Bcc: > X-Attachments: > > At 05:34 PM 7/15/96 -0400, you wrote: > >Hi everyone, > >I am a new subscriber, and am here on behalf of my wife, now 61, and > >diagnosed about a year ago. She has no tremors but is fast losing fine > >motor control..ability to balance, and therefore walk, and speech is > >becoming mechanical. At times not understandable. > > > >All this resulted, say the neurologists, from contracting ENCEPHALITIS > >when young, leaving the brain scarred. > > > >We would like to contact anyone relating to this "encephalitic" Parkinsons. > > > >Graham Lacey. > >[log in to unmask] > > > >Dear Graham, > This is a very unusual diagnosis for 1995. Apparently Mrs. Graham > was born in 1935 or thereabouts. There have been almost no new cases > attributed to encephalitis since the early 1920's as far as exposure > or initial onset is concerned. > A friend [an MD who has PD but is not a neurologist - a psychiatrist] > had a mother-in-law with post encephaletic PD and her husband -a > veterans' hospital MD-won a $250 prize in 1928 for his essay on the > Encephalitis Epidemic which was history then. > [note: $250 would about buy a new car in 1928]. > > I would recommend a second opinion from another neurologist, preferably a > movement disorder specialist, if you have not already gotten one. > > Will Johnston 4949 Oakland School Rd Salisbury MD 21804 > Voice 410-543-0110 > > --=====================_837562155==_-- > > ------------------------------ > > Date: Tue, 16 Jul 1996 20:14:14 -0400 > From: Barbara Patterson <[log in to unmask]> > Subject: CONSTIPATION X PARKINSON (fwd) > > Date:=09Tue, 16 Jul 1996 20:09:19 -0400 > From:[log in to unmask] (Jo=E3o Roberto D. Azevedo) > Subject: CONSTIPATION X PARKINSON > > Constipation is part of the Parkinson Sindrome. Every PD has at least some= > =20 > degree of intestinal imobility. The drugs, specially bromocriptine, tend t= > o=20 > worsen constipation. In my vision two things are very important to lighten= > =20 > the situation: fisical activities and fibres.Sedentarysm and diet are very= > =20 > important.Propulsid, Senokot and Lactulose are good drugs but not so good a= > s=20 > natural fibres.People who are plegic with cord lesion, for instance, can=20 > keep intestinal working with diet rich on natural fibres. > jrobert > > ------------------------------ > > Date: Tue, 16 Jul 1996 20:17:09 -0400 > From: Barbara Patterson <[log in to unmask]> > Subject: HALLUCINATION X PARKINSON fwd) > > From:[log in to unmask] (Jo=E3o Roberto D. Azevedo) > Subject: HALLUCINATION X PARKINSON > > Hallucination is not a PD symptom. The principal cause of hallucination (= > =20 > mainly visual hallucination ) is drug intoxication and the classic example= > =20 > is alcohol intoxication. Some drugs used regularly on medicine can cause=20 > hallucination and the symptom goes away when stop the drug. The first thing= > =20 > to do when we are in front of hallucination is to study with care each dru= > g=20 > on use to stop the correct one.I saw many times, hallucination appear later= > =20 > on the PD treatment with levodopa and vanish with the withdrawl of the=20 > levodopa, or sometimes just lessing the drug dose. > We must understand that PD patient often receive many diferent drugs (for= > =20 > hipertention, diabetes, pain, etc) and eventualy they can interact. The las= > t=20 > thing to do when in front of hallucination is to add another drug. > jrobert. > > ------------------------------ > > Date: Tue, 16 Jul 1996 23:53:24 -0400 > From: "Bethany L. Johnson" <[log in to unmask]> > Subject: Re: Falling too often. > > On Tue, 16 Jul 1996, Phillip Dunn wrote: > > > I am beginning to fall over far too often and am anxious to avoid hurting > > myself seriously. > > It seems that I get onto my toes when turning, or starting off, or > > hesitating,then I begin to stutter with my feet and loose my balance and > > fall.All this happens very quickly and as I do tend to do things quite fast > > my feet suddenly don't move.I think this is linked with my medication as I > > also notice that when I feel unsteady my medication has not worked fully. > > I have the same kind of problem when going down slopes and this is becoming > > a sort of Psychological problem as I hesitate and stutter with my feet. > > Does anyone have any ideas as to how I may overcome this problem? > > > > Syd Adams. 106072,[log in to unmask] > > My mother seems to have the same problem that you do. She can't seem to > get her feet going, but I've found that if we verbally prompt her as to > what to do (eg. say "left foot") then it helps to get her feet moving. > At times when she's having a really bad day we'll just keep talking her > through (left foot, right foot, left foot, etc.) until she seems to be > fairly steady on her feet. She's grown a dependency on the objects around > her recently. She doesn't use her walking stick very efficiently, and my > dad and i find ourselves being supports for her as she walks. > > Hope this helps! > > Bethany > > ------------------------------ > > End of PARKINSN Digest - 15 Jul 1996 to 16 Jul 1996 > ***************************************************I have tried everyway I know to remove my name from the list. Nothing seems to work. Does anyone have a suggestion? I would greatly appreciate your help. Thank you.