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It has been a little while since i posted anything...things have been quite
tough. however i wanted to respond a little, comment a little and thank
again for the advice and support always reappearing here inside this
computer land. my mother has had quite a time of it the last couple months
as has all our family. long story short...cramping, pain, confusion,
delusion, depression, suicidal wishes...she was put on morphine, valium,
and most recently mellaril.
within 5 weeks she moved from home to emergency ward to hospital to rehab
center to 2 board and cares, and back to emergency then home to 24 hour
care. that is one long story.
the good news is, and seems to relate to some of the questions i have been
reading about hallucinations, mellaril, clozaril, pallidotomy. well,
anyway, we finally got her to Dr. Waters at USC, really the first time in
10 years she has seen a true specialist. The doctor (and a psychiatrist we
saw last week) said she was very surprised and not happy to see my mom on
morphine. she said she almost never sees a parkinson patient on such a
strong pain killer and found it very inappropriate. she also said the
mellaril is inappropriate as it counteracts any good the sinemet is doing.
the morphine just makes one more confused, frightened and panicky. and her
pain is from levodopa fluctuations, not a hip problem.
at this point we are praying the next week will not be too tough...she
starts on a very low dose of clozaril tonite and then tapers very slowly
off the morphine.
then i was very surprised to hear that Dr. Waters thought my mother might
make a candidate for a pallidotomy. The doctor herself said she doesn't
push for the surgery that much, however my mother's case seemed to be an
exception. She did say that my mother has one of the more complicated
situations she has seen, but she gave us some hope. and not only that, she
got on the phone and worked with our regular neuro., since that is where
the insurance lies.
It is all so difficult, but having some goals, even very short term, help
tremendously. i apologize for the length here.
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debbie