This is a post from one of the participants of the Pall Stimulation study by
KUMC team of Drs. Koller/Wilkerson. Some of you may want to invite him to
join us here. He is not a subscriber....yet.
>Date: Sun, 21 Jul 1996 18:15:39 -0500 (CDT)
>X-Sender: [log in to unmask]
>To: jcott
>From: [log in to unmask] (Bill Olson)
>Subject: Parkinsons Chat channel
>
> I am not very adept or competent on our PC, bt I would like to be
>able to communicate with other Parkinsonians. Would you be interested in
>giving me some instructions.
> I have a program that came with my websurfer sampler called News
>Xpress, but so far, I haven't been able to get it configured so it will do
>anything for me.
> Eudora seems to work out for my E-mail.
> Another program with my Netmanage winsock is WS_FTP, and I do not
>get much there yet either.
> My wife can access the YAHOO server at work and has brought home
>some interesting stuff on Parkinsons, from which I got your name and E-mail
>address. I am iimpressed by your computer knowledge, and the way you are
>reaching out to others.
> I have had two brain surgery operations since Jan. 4 at the KU MED
>CENTER at Kansas City, KS. The leads from electrical stimulator devices made
>by Medtronics were implanted in my globus pallidus, and I am being observed
>and tested at 3 month inervals by Dr. Wm. Koller and his research team. I
>was just the fourth operation in a series of five persons to receive this
>approach, and we are quite encouraged by the help I am getting from my surgery.
> Propbably the most help I am going to receive is a marked lessening
>of dyskinesia from medication. This is especially evident since I am able to
>tolerate enough levodopa/carbidopa and permax to be "ON" most of my waking
>hours.
> Prior to my surgries, I was having occasional nigthtmares(I would be
>shouting loudly when I awoke) ,and very little control over lashing out with
>my left arm and foot, and I tended to be "OFF" for 4-6 hours every day.
>Before surgery, I was on 11-12 Levodopa-carbidopa 25\100 and 10-11
>permax(0.25 mg.) daily at hourly intervals.The dosage has increased by 3-4
>daily. Much of my levo-carb is taken by crushing 10 pills and taking them in
>a solution of water with the addition of 2 grams ascorbic acid per liter. I
>take 60-90 mils every hour. I still go "OFF" after my supper for 2-3 hours,
>but am "ON" most of the rest of most days. I avoid eating protein-rich food
>until supper time, as I am very sensitive to turning "OFF" if I consume much
>food during the day. I do snack on "junk-food such as pretzels, potato chips
>and sweet rolls through the day to keep me from getting too hungry.
> I need to get more exercise, but it is hard to do consistently.I am
>66 years old, and retired in 1988 on disability from the US Dept. of
>Agriculture. Veterinary Services. my DVM degree from ISU, Ames, Iowa in
>1952. I spend too much time trying to keep our computers functioning......
> Dr. Wilkinson has been doing a similar procedure for tremors since
>early 1995 for people with disabling tremors. The lead is placed in the
>Thalamus and most of the people have had familial inherited tremors, but at
>least one was a man whose diagnosis was Parkinsons. His case is quite
>different from mine in that tremor was his only evident symptom, and he
>enjoys complete relief on the side that is done. We were both guests on one
>of the last shows done by Phil Donahue.
> Yours Truly,
> Bill Olson
>
>
>
>
John Cottingham To search the Parkinsn archive, send search requests
to [log in to unmask] with Archive Search as the subject.
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