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I am considering unilateral and bilateral pallidotomy. I am
globally-oriented, and wonder if Sweden or the U.S. or elsewhere is best..

I also want to know more from NADH users.

I speak French  and  English.

I need advice from those of you who can take the time to write.

I rapidly  use  up PD meds...and have to take them every 2-3 hours, plus
heavier nighttime dosing.  I have SEVERE end-of-dose tightening and cramping
of muscles, painfully slowing down, sometimes 5 or 6 times/da.

Tremor is NOT a dominant feature.  In fact, it is very limited.

I am becoming very tired, and am dreadfully  concerned about Maine's long,
cold, damp, snowy upcoming winter.. Last winter by the woodstove was
exhausting!!

I am an otherwise healthy, 46, pd diagnosis March, 1989, actual symptoms as
early as June, 1987, male, Euro-American. I am 5'11", 165 lbs., athletic,
former college prof(anthropology and anatomy), non-smoker, passionate about
life!

I am a  well-known human rights activist, and am  working very hard on
passing the Udall Bill.

I cannot work outside my home and live inadequately  on $746/mo, i.e. Social
Security....and feel enmeshed in a tiger's grip by PD.

My condition has rapidly worsened (though my spirit is doing pretty well).

I have no domestic partner.

I have many friends, but my biological family is distant and is responding
poorly...this may be because I have a strong gay component in my sexual
orientation.

Soooo, there you go, friends--I can't be "in the closet" to  you.  I trust
you will be understanding of gay, bisexual and lesbian PWP's (People with
Parkinson's).

I live with a friend who is like an adopted son, 22.  We are strictly
friends.  He is gay.  We share my house.  We met in the Maine Gay Men's Chorus.


I need 1100-1200 mg. Sinemet/da.  I use 4 x 2.5 mg. Eldepryl/da.

There are no parkinson's specialists in Maine.  I believe my dopamine
deficiency is of genetic origins.

I am not sure  how to evaluate my medical condition.

Permax in tiny doses made me disoriented.  Parlodel blocks my digestion
horribly...

Anti-gay doctors and attitudes  make my search for care a DOUBLE-WHAMMY!!

Please advise.

Ivan Mfowethu Suzman   Portland, Maine
([log in to unmask])

My Concord grapes are doing GREAT and will be ready in ten weeks.........

P.S. Camilla and Sherri,  THANKS for your letters...keep them coming!  And
Janet,what is  Bermuda weather like for Parkinsonians?