Print

Print


                                 RTK.NET Mail 192673   Aug  9 23:46:11 1996


There is always a lot of discussion of alternative treatments as well as
many of the standard treatments, such as Eldepryl.

First, in this USANA claim, I would be extremely suspicious of any product
for which a list of ingredients was not readily available.  It seemed to
me that Barbara was asking for this in her message, but not getting it.

Second, even a documented improvement in symptoms for a significant number
of patients does not mean that the treatment is slowing the progression.
Take Eldepryl as an example:  some neurologists believe it acts as a
neuroprotective agent because of its action in reducing MPTP damage in
animal studies combined with the promising results of human studies, others
think Eldepryl primarily slows the breakdown of dopamine and helps a
smaller amount of Sinemet work better and delays the need for Sinemet
through this mechanism, and still others believe that Eldepryl does little
in either of the preceding areas and primarily works because it provides
symptomatic relief of PD symptoms.  When you look at how much uncertainty
there is about a well-studied medication because of the complexity of
brain biochemistry and the variability of patient response, imagine how
tremendous this becomes with a substance that has not been systematically
and objectively studied.

Third, the fact that something hasn't been tested doesn't mean it won't
make you feel better.  In fact, there is not clear evidence that antioxidant
vitamins slow PD or AD progression, however, since it could be helpful and
a doctor who knows what medications the patient is on can be pretty confidant
that taking certain amounts of these vitamins will not hurt the patient, many
doctors will suggest taking them just in case it could be of some help.
On the other hand, many people with PD would feel better if they started
taking Ibuprofen and prescription muscle relaxants each day, in fact, that's
standard treatment for someone experiencing temporary muscle spasms and
cramps.  But over the long term, Ibuprofen is hard on the liver and stomach
for many people, and muscle relaxants may cause other problems and often
become addictive when used for a long time.  Also, many treatments will
feel good for a little while, but the results won't hold out over the long
term.  Determining whether a product you wish to try is not harmful and
will be worth the cost over time is very tricky when little or no research
has been done on it.  With an accurate list of ingredients, however, your
doctor may be able to theoretically evaluate whether the product is likely
to hurt you.

I don't mean to say that alternatives should never be tried, even when you
can't get all the answers.  But these are some things to keep in mind
when someone urges you to buy an expensive product that they say has helped
thousands of people.

Sherri
[log in to unmask]