 |
 |
Hello Brenda My name is Joyce and I read your message with double interest. First to welcome you to the list Second to tell you that I too have elephant ankles. My first symptoms appeared almost 13 years ago as a finger tremor when I was 40 This December will be two years that Im on this list and I gained all my inner strength and knowledge of PD from being here. So much so that on May 13 I had a pallidotomy in Toronto Although there has been only one MAJOR benefit (NO MORE TOE AND FOOT CRAMPING) I know that I am still in the healing process because of all the subtle improvements. But, since then I have been gaining weight (water). My ankles and my legs started to swell up to edema catagory. Because of that I have visited internists, had cardiograms along with blood and urine tests. The internist and neuro are quite concerned about the edema. I will be having a echocardiogram next week. I started taking a water pill daily back thirty days ago. It helped for a while then stopped working as well but at least im not gaining anymore. My legs hurt from the hip down up to about 1p then it seem everything turns around and I'm almost "normal" until about 11P when I get stiff again. It seems that since the "P" Chuck has been working with the neuro's to reduce my meds. Its a slow process but since I see no difference in my overall condition I guess the reduction is working. NO dyskenisia's. Taking a tip from the late Alan B. I started reducing process with the CR and Parlodel.. Each ten days we coming down either one CR, one Parlodel The only one we havent touched is the regular Sinemet and the Permax.. We're all pretty confident that a continued reduction in my overall meds will eventually be in my favor. Atsome point maybe the weight and water will come down as well. Brenda, hang in there, it a long and winding road. Dont forget, your in with a great crowd who you can share with. Joyce .