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I have been a fairly silent participant on the server for about a year
now. I have been conducting Quality of Life research in Parkinson's
Disease with an emphasis on QOL after pallidotomy. Perhaps without
knowing it, all of you have helped tremendously in my research efforts.
I learn so much from the things I read and from your experiences and
concerns. Thank you.
Now, I find myself in a situation where I need your direct help. My
brother is involved in the care of a distant relative who has PD and
is still living in her home in Sunnyvale, CA. She has day time care
which has been only marginally adequate. Also, she has a live-in
relative who manages much of her affairs and who has been regularly
undermedicating her. My brother has taken legal action and has gained
power of attorney and is trying to set up better arrangements without
moving her to a nursing home. (When she is properly medicated her
functioning is adequate enough that this is a very realistic goal).
Unfortunatley, he cannot actually move in with her and needs to make
arrangements for good quality in-home care.
Do any of you have any experience locating such services (especially
in the San Francisco Bay Area) and advice for how to screen such
people. Also, I would like to connect my brother with a local support
group in the area. Can someone give me names and phone numbers?
Thank you for any help you can give us to help both my brother and
this lady.
Linda D'Antonio, Ph.D.
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