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Boy am I ever confused.  I find this disease more puzzling everyday.
Last week Fuad and I were very depressed.  It had been a year since his
stroke and he seemed to be getting worse rapidly.  Things that he could
do easily six months ago he wasn't able to do.  He was confused most of
the day especially after his second dose of meds.  He was becoming more
and more dependent on me and I felt like I was in quicksand and the
harder I tried the deeper I/we sank.  This roller coaster ride seemed
never ending.  My neighbor even commented on how much worse he was
getting.

On our granddaughters birthday, Tuesday, I was so depressed that I cried
all day.  So I sent Matthew and Fuad to the party without me.  I didn't
want to spoil it for her.

On Saturday Matthew went to help his sister with the Summer Festival for
the town.  Fuad and I were suppose to go and enjoy things, but I just
could not face pushing his wheel chair around in the heat.  We stayed
home and really relaxed all day.  We found nice classical and easy
listening music on the internet and played around with those all day.
On Sunday we did pretty much the same thing, although I did have to go
to a client's house for two hours in the evening.

On Monday morning he got up early and made it downstairs before taking
his meds.  We had a very busy day and I was not feeling well at all.  So
I went to bed very early and Fuad stayed up very late.  Yesterday,
morning I slept late and was in a hurry to take Matt to band camp so I
let Fuad sleep till I got back.  He slept until 10:00 (he didn't get his
7 AM dose until then) He was so alert and able to function.  After
breakfast he walked on the treadmill for over nine minutes without
stumbling.  He had not been able to go more than 3 minutes without
stumbling the week before.  We were very busy and distracted all day and
forgot his noon meds which I figured he would take about 3 PM.  It was 7
PM before we even thought about them.  So I didn't give him his second
dose of Eldepryl because it was too late in the day for it.  In the
afternoon Fuad even attempted to converse on the chat channel.  He
didn't do much, but it is a start.  Later in the evening around 8 PM he
tried walking of the treadmill again and did 6 minutes without a stumble
and then did another 1.5 minutes before he became too tired.  WOW, what
a difference.

This morning we were up at 7 and I thought that Fuad would not be able
to move.  Surprisingly, he was not even as stiff as usual.  He was able
to get out of bed with very little assistance and talked more clearly
than he had in months.  He dressed and came down the stairs by himself
in just a half hour.  He is thinking more clearly and the shoulder pain
that is usually the first indication of under medication is not there.

After breakfast he walked on the treadmill for 13 minutes with just two
stumbles.  (What I mean by stumbles is that when his stride gets too
short he goes into the stutter step mode and must stop and restart.)
Then he did his stretching exercises and took a short nap.  He is still
clear thinking and better able to talk.  I don't know if this is just a
hopeful up time or whether the accidental reduction in meds shows us
that he doesn't need as much.  One thing is for sure.  When he is clear
headed he is able to walk and talk much better.  How do I figure this
out.  I don't want him to have one mg more or less than he actually
needs.  Maybe the relaxation and less stress has helped.  I let him know
today that he is too intelligent to let his mind vegetate.

Well, any way the roller coaster ride is still continuing and we're not
getting off.

Barb and Fuad
The chicken farmers from Maryland's Eastern Shore

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PK