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Brian:  Here are some data for your survey:

        1.  Time since diagnosed - 19 years
`       2.  Time since first symptoms - 21 years
        3.  Age when diagnosed - 43
        4.  First symptoms -  Lack of coordination in my hand.

Had a pallidotomy in March with only minimal improvement.  Still plugging
along but
every day brings a new challenge.

Joan