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Hi!
I wrote to the list about two weeks ago for any experiences anyone might have
had using a PD specialist as opposed to a general neurologist.  I had been
waging an unsuccessful war with my HMO for permission to see a specialist at
the Parkinson Institute in Sunnyvale CA. They refused to cover my initial
visit as well as visits in the future.
My final appeal was last Wednesday .  I went armed with wonderful, logical
arguements and even read them highlighted exerpts from the  responses I had
received from the list (I told them you were the real experts in the field).
 In spite of my pleas and a few tears I added for effect(easy for a Parkie),
they turned me down.
I had originally ha a real problem with their approved neurologist who I felt
was totally incompetent. The HMO suggested four others who they said were
completely qualified in treating PD, but I found upon questioning their
staffs, that they had only a few PD patients and no special training or
interest in Parkinson"s Disease.
At my Wednesday appeal, they told me that there was no way they would
consider allowing me to go to the Parkinson"s Institute but would use all
their mighty resourses to find a PD specialist that I would like.  They said
they would give my primary care physician a list of Neuros to check out. My
doctor called with ONE name they had given him and he was absolutely furious
with the HMO because he thinks I should be able to get the best care
available - at the Parkinson's Institute.
At any rate, I called the "PD specialist" the HMO recommended
and found out he has no special training in PD or movement disorders, nor any
special interest or expertise in treating the disease.  Their patient
referral service suggested I see someone at the Parkinson's Institute !!!
I was so angry at the HMO, that I immediately called the Dept. of
Corporations which regulates HMO's here in Calif. to file a complaint.
They're sending out a packet for me to submit and I intend to follow this
through to the bitter end.
Thanks for letting me rant on.
Mary ([log in to unmask])