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Subject: Re: Hello,Cathy ------------------------------------------------------------------------------- >Hello Cathy Malinowski, >Thought I would say welcome to you too, from Australia, just to make you >feel connected to the wider Parkinson world. I see Camilla has already Wider is correct. Hi there, Cathy, from Bombay, India. I wish I'd discovered this list before I did; I've stayed subscribed even after my mother - who had PSP (Parkinson Plus) - died 3 months ago. >Personally, one thing that is hard is that no-one that I know is going through >any health problems with their parents or anyone else in their family. I'm 28 >and my brothers are 36, 38 and 40. My brothers are almost the same age as my >friends' parents. It's weird because the only people to talk to are my brothers >and my mom. I'm 34 - was about the same as you when my mother was diagnosed. Now that I know more, I guess I should be grateful she wasn't *mis* diagnosed, but at that time - and for a long time thereafter - the overwhelming felling was "why me?" and even more "why HER?". Before my mother got PSP, she'd always been in perfect health - perhaps that's what made it even worse. One really can't do anything about, but learn to live with it, though it took me 3 years to reach any kind of degree of acceptance. If you send me your email address, I'll send you something I'd written - it was a kind of catharsis for me and might make you feel less alone. Isolation is a terrible feeling. This list and CARE make it a bit easier, apart from offering some real, practical help. All these years I never met anyone else with PSP (apart from David Saks and the SPSP lot). Within a day of joining this list, I met 2. Sarita, co-CG for Swarn, now deceased, PSP, 66/6