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I have to agree with Ernie.....I find the lack of handwriting a major frustration. It seems daft to type shopping lists on the computer and take down travel directions on a memo recorder. I have little to no tremor to "declare" to the world I have PD and I hate the strange looks when I say I can't write. They look at you as if you are an illiterate idiot! That is one thing I am not! Happy typing everyone! Emma >Jacob... > >It seem to me we're each indiviudally bothered by so many different PD >symptoms, that whatever is the worst per individual IS the worst indignity >THAT person suffers from the disease. IF micrographia (tiny handwriting) IS >the worst PD symtom that Ernie suffers (and lucky HIM if it IS....) then why >belittle his feelings about it? He WANTS to be "normal," and to be able to do >one of the simplest tasks that a "normal " adult person does.... to handwrite. > >This is a matter of "pride," and perhaps denial, and controlling our own >life..(and maybe ignorance about PD, too). It IS embarassingly frustrating to >have to ask others to handwrite for us. And it IS embarassing to be forced to >admit not only to yourself but to a roomful of strangers that ya need that >help because your have Parkinson's (or any disease) and that you've reached a >stage where you can't do eveyrthing for yourself, and must humble yourself to >ask strangers in a public place for assistance in accomplishing such a simple >act. It's embarassing AND dehumanizing. It is embarassing to feel >"different" than everyone else in that room. > >We each adjust to, and eventaully accept that we have this terrible disease >only when IT forces us to, and not before. How many of us have bargained with >God or whatever we believe or don't believe in (gee.... is that politically >correct enough?) <grin>, saying something like, "Well, THIS I can live with, >even tho I can't button a shirt ay longer or tie my shoes (or handwrite)... >but PLEASE just don't let it get any WORSE?" > >IF not being able to write IS the worst thing about having PD that Ernie has >had to adjust to then whom amongst this group of individuals hasn't faced some >other PD symptom and said, "I have stood it all, but THIS I can't stand?" And >who are ANY of US to consider that personal loss a "trivial" matter? And whom >of us has not grieved for the loss of a "normal" function due to PD? > >NOTHING about Parkinson's is "trivial" for anyone who has it, I believe. > >Barb Mallut, >[log in to unmask] > > >---------- >From: PARKINSN: Parkinson's Disease - Information Exchange Network on behalf >of Jacob Drollinger >Sent: Tuesday, September 17, 1996 10:21 AM >To: Multiple recipients of list PARKINSN >Subject: Re: Does anyone else have these symptoms > >Dear Ernie, > >I don't want to sound rude or anything, but your letter seems to be quite >trivial. I would give my eye teeth to swing a golf club without falling over, >much less make good contact. I write quite well, a little slow, but large and >clear, but I would give that up in a heartbeat to be functioning as well as >you are. Take heart, Ernie, help is not too far around the corner. > >Jacob > >